Dr. will not take another blood test and CT scan for 3 more months so we won't know if Calquence is working til he's taken for a total of 5 months .
I have CLL, diagnosed in June 2022. Started oral treatment in Dec 2023. I had 3 episodes of dizziness, upset stomach since December. My lumph nodes were swollen in my neck and under my arms.
Thank you so much for the comments. It helps. I was thinking it may be a blood pressure issue as well.
I had Primary CNS Lymphoma so yes I had that treatment I don't remember any side effects from it at all but I was doing Methotrexate and Rituxin treatments at the same time
I totally agree. You need to see the oncologist before July. One of the signs of lymphoma was itching… I had no idea - I was trying to figure out what I was allergic to!!
You have to be your own… read more
I was diagnosed with indolent Mantle Cell Lymphoma. No symptoms, almost nothing to detect in blood test and some very small lymph notes seen on PET scan. Biopsy and testing pointed to very slow indolent process. Had 4 months first follow up scan and blood test. Very little changes in scan and blood test. I have urticaria for 2.5 years which was not attributed to any lymphoma at that time. But now it may have been a symptom of it. Doctor offered now those 2 choices. She says that this treatment… read more
Bendamustine and Rituximab have severe side effects for some of us.. lookin resources for this info or any reputable website..
My oncologist never asked what symptoms I am having his visits are 15 min ! And I try to ask question as I have RUNX1 familial rare platelet disorder related to multiple malignancies and have yet to be tested or treated and already having pulmonary embolism you would think ? The lab test and tx is under Pubmed ! It is discouraging and I am not going to be told to go to Mayo, Moffitts, UFShands the worse specialist that assume a patient is alcoholic rather than read the medical notes it is NAFLD… read more
Hi Cathy - I highly recommend your making an appointment with a different oncology group. No need to share your experience you've had with the group with which you are currently a patient. Have access… read more
He was diagnosed as stage 3 but is in complete remission after half the chemo, is there any reason he would do more than 4 cycles? It seems crazy that he would pump those chemicals into his body when there’s no sign of disease just because it’s protocol. I can’t find any research regarding this.
I had my treatment’s reduced in strength when severe reaction occurred…negotiate a plan with oncologist
Give it time I love bourbon but had to give it up through treatment. As I recovered I was able to enjoy it again.
I get my 4th cycle next week and I'm wondering how long I can expect to feel tired after this treatment is done.
you could use some natural supplements from NCHC, they prescriptions are extremely effective , i am certain it will really help
CindyBlow,
I hope you find a treatment that helps you. I hope you have a peaceful day. Kelly