Questions & Answers

My white red and platelets but kidneys are heading the wrong direction, he is have it my primary handle it, he called it chronic Kidney Stage 3a. I am 80 feel good

Dr. will not take another blood test and CT scan for 3 more months so we won't know if Calquence is working til he's taken for a total of 5 months .

I have CLL, diagnosed in June 2022. Started oral treatment in Dec 2023. I had 3 episodes of dizziness, upset stomach since December. My lumph nodes were swollen in my neck and under my arms.

I was diagnosed with indolent Mantle Cell Lymphoma. No symptoms, almost nothing to detect in blood test and some very small lymph notes seen on PET scan. Biopsy and testing pointed to very slow indolent process. Had 4 months first follow up scan and blood test. Very little changes in scan and blood test. I have urticaria for 2.5 years which was not attributed to any lymphoma at that time. But now it may have been a symptom of it. Doctor offered now those 2 choices. She says that this treatment… read more

My oncologist never asked what symptoms I am having his visits are 15 min ! And I try to ask question as I have RUNX1 familial rare platelet disorder related to multiple malignancies and have yet to be tested or treated and already having pulmonary embolism you would think ? The lab test and tx is under Pubmed ! It is discouraging and I am not going to be told to go to Mayo, Moffitts, UFShands the worse specialist that assume a patient is alcoholic rather than read the medical notes it is NAFLD… read more

He was diagnosed as stage 3 but is in complete remission after half the chemo, is there any reason he would do more than 4 cycles? It seems crazy that he would pump those chemicals into his body when there’s no sign of disease just because it’s protocol. I can’t find any research regarding this.