Connect with others who understand.

Sign up Log in
Resources
About MyLymphomaTeam
Powered By
Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Imbruvica" in Q&A. To see all results and access other features, sign up for free.

Imbruvica Has Lost Its Effect. What Have Folks Been Taking After IMBRUVICA? I Have CLL, 2015.

A MyLymphomaTeam Member asked a question đź’­
Cleveland, OH

I'm About To Start Brukinsa For Waldenstoms. Had It Since 2006. IgM At Only 975. Any Si Effects? Im Already Fatigued With Bad Fibromyalgia.

A MyLymphomaTeam Member asked a question đź’­
Crapville, TX
•
View reactions
A MyLymphomaTeam Member

Been on Brukinsa since January no side effects like James mentioned for me thankfully I just have my normal fatigue

Has Anyone Taken Calquence And What Test Determines That It's Successful?

A MyLymphomaTeam Member asked a question đź’­
Pittsburgh, PA
•
View reactions
A MyLymphomaTeam Member

Thanks for the information. So far, only side effects is headaches sometimes.

Leg Cramps

A MyLymphomaTeam Member asked a question đź’­
Erwin, NC

Hey newly diagnosed with CLL I was wondering if it can cause cramps in the calfs

•
View reactions
A MyLymphomaTeam Member

I'm not on anything right now it is still stage 0 but yes I get woke up in the middle of the night with cramps in my calfs

Calquence Or Venclexta? Pros And Cons Of Each Treatment?

A MyLymphomaTeam Member asked a question đź’­
Naperville, IL

My friend is recently diagnosed with CLL (as am I although I’m still on Watch and Wait). His dr is recommending treatments for him and he’s trying to decide these two treatment plans. Any advise about them would be appreciated.
Thank you.

•
View reactions
A MyLymphomaTeam Member

I use Calquence with no issue then the fact I am 74 and I move around a lot. By the end of the day, I have back pain, but I don't care and I am not going to take more medicine for this. I just site… read more

What Have You Heard About The New Drug ATTRCM For Lymphoma. What Type And Stage Do You Have To Have For It To Work

A MyLymphomaTeam Member asked a question đź’­
Rochester, NY
•
View reactions
A MyLymphomaTeam Member

I also started coughing took all kinds of medicine. It lasted for about 2yrs. And I never got shots for covid and my better half got Covid and my grand kids got it. Sleep with my better half and never… read more

I Have MZL Stage IV. I’ve Been Taking Imbruvica For 3 Years…now Imbruvica Has Been Discontinued… What Other Medications Is Anyone Taking?

A MyLymphomaTeam Member asked a question đź’­

Leukemia And I Take Imbruvica 1 Pill A Day , I’m Really Curious How Many People Are On This Treatment Of Imbruvica

A MyLymphomaTeam Member asked a question đź’­
Gilbert, AZ

I’m 80 yrs old I have Chronic lymphocytic leukemia and I take Imbruvica 1 pill a day , I’m really curious how many people are on this treatment of Imbruvica

•
View reactions
A MyLymphomaTeam Member

That’s too bad it’s just scary the side effects from it I was on Calquence but got a rash from it twice less chance of afib with Calquence so I wish I could have stayed on that and no eye sx with it… read more

Has Anyone Been On Imbruvica For At Least A Year?

A MyLymphomaTeam Member asked a question đź’­
Swampscott, MA

I have been taking Imbruvica for Waldenstroms for a year and my labs have improved but I wonder about side effects since I’ll be on it for the rest of my life (I am 80). I watch my diet and exercise, hoping to get back to feeling “normal” and will be pretty good energy-wise for a couple of weeks and then not feel well for two or three weeks with fatigue, itching, light headedness, low grade late afternoon temps, tired legs and hips, and now I have tinnitus. Compared with what other lymphoma… read more

A MyLymphomaTeam Member

Thanks Bill. I have the brittle nails and bruising too. So glad to know it’s working for you.

I’ve Been Diagnosed With CLL And On The Wait/see Program. Generally, How Long Is It Until The Disease Takes Off!

A MyLymphomaTeam Member asked a question đź’­
Sierra Vista, AZ
•
View reactions
A MyLymphomaTeam Member

It took me a couple of years before I needed to be treated. So far good results. White blood cell down and no side affect. I’m taking Brukinsa