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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

By A MyLymphomaTeam Member 48 answers

Do You Have A Hobby To Help Take Your Mind Off The Cancer?

By A MyLymphomaTeam Member 26 answers

Are You Frustrated With Finding Effective Treatments For Lymphoma?

By A MyLymphomaTeam Member 44 answers

What Are Your Top Tips For Dealing With Lymphoma In The Heat?

By A MyLymphomaTeam Member 45 answers
2137 questions

Does Anyone Know If It’s OK To Get The Covid Vaccine.

A MyLymphomaTeam Member asked a question 💭
Tubac, AZ

I have Non-Hodgkins lymphoma…. Waldenstrums Macroglobulemia. I’m in the watchful waiting period as none of my symtoms are bothersome.

A MyLymphomaTeam Member

Thank you Maryanne.

June 28

IM On Brukinsa After 4 Years On Remission...so Far Doing Well Does Anyone Out There Using Brukinsa And If So For How Long And Is It Working

A MyLymphomaTeam Member asked a question 💭
Orlando, FL
A MyLymphomaTeam Member

I have been on Brukinsa since Jan. along with my B&R cycles. March scan showed good improvement on the MCL, I have another scan July 15th and Rituxian maintenance on July 18th other than fatigue I am… read more

June 29

Do One Get More Bladder Infections With Lymphoma? Battling This Now.

A MyLymphomaTeam Member asked a question 💭
Jeffrey’s Bay (Eastern Cape), South Africa
A MyLymphomaTeam Member

Dear Rhonda. That must be very frightning to see. Please let us know if this is normal for L cancer treatments. Lots of hugs. Wishing you good health.
Huldah

June 27

Does Anyone Else Have Liver Disease As Well?

A MyLymphomaTeam Member asked a question 💭
Waverly, IA

I was diagnosed in December 2023.
I get the results of my liver biopsy on Friday 6/21. My spleen shrunk from Rituximab infusions, now the focus is on my liver. In July the focus will be on ovarian cysts.

Then I asked what stage my NHL is and my doctor said stage 3 because there is some in my bone marrow. She assured me that I could live a full life. It was weird.

I don't know what to say.

A MyLymphomaTeam Member

Your husband is a trooper!

I've been fortunate that my spleen shrunk and that I tolerated the infusions well. I have several other health issues that I'm going through. I'm feeling tired of being… read more

July 1

What Are You Doing Today That Gives You Joy Today?

A MyLymphomaTeam Member asked a question 💭
Sebastopal, CA

I am taking a drive up the coast later (once I deal with my lost phone) to enjoy the Redwoods and the wonderful ocean scent and the sounds of the powerful water as the waves fold and then run up the sand.

A MyLymphomaTeam Member

I enjoy my walks with my husband and dog everyday to the ocean.I enjoy lunches and gatherings with my friends.I love to travel .

June 26

Are You Frustrated With Finding Effective Treatments For Lymphoma?

A MyLymphomaTeam Member asked a question 💭
San Francisco, CA
A MyLymphomaTeam Member

Virginia commonwealth University.

September 18

Is Anybody Taking Supplements That They Feel Is Helpful?

A MyLymphomaTeam Member asked a question 💭
San Sntonio, Tx
A MyLymphomaTeam Member

Joe10, you will be fine, just drink a big glass of milk

August 27

Been On Ibrutinib, Venetoclax, Or Obinutuzumab? If So, Any Issues With Nausea Or Hair Loss?

A MyLymphomaTeam Member asked a question 💭
Clovis, CA

I’m having a ton of nausea even though I’m being told on this clinical trial it’s uncommon to be nauseas. I’m also starting to lose hair which I was told wouldn’t happen. Just looking for community.

A MyLymphomaTeam Member

Going through chemo treatment, I learned the importance of drinking water... During the infusion and afterwards, to flush the meds through your system as quickly as possible. When I was slack on… read more

June 16

Anyone Else Have An Unmuted Gene On Top Of Diagnosis? What Do You Know.

A MyLymphomaTeam Member asked a question 💭
Payson, AZ

I'm stage 4 small cell Non-Hodgkin lymphocytic lymphoma with parotid and bone marrow involvement. But I also saw dlbcl in pathology reports? Doctor did not address I'm so confused

A MyLymphomaTeam Member

I'll take the luck and run lol

June 15

Would Like To Exchange Comments With People Who Have Orbital Lymphoma.

A MyLymphomaTeam Member asked a question 💭
Loveland, CO
A MyLymphomaTeam Member

And you as well.

June 17
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