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Hi Is There Anyone Who Has Gone Through Large B Cell Chemo Treatments In San Bernardino Area? I Need Someone To Take Me Down.
I do not live in Ca but I just had my first treatment, please find a way to get there, stay positive. Sending much love and good vibes! :) <3
I Hope To Find A Mantle Cell Lymphoma Patient With A History Of Liver Transplantation So That I Can Have A More In-depth Discussion.
RegHe
Hi and welcome to the site. Everyone on here is so kind, supportive and helpful. I have/had DLBCL and had treatments of RCHOP chemo. I've been in remission for 3 years. I hope you have a… read more
Does Anyone On Here Have Trouble With Their Eyes Due To Benign Lymphoma. Mine Was Diagnosed From Biopsy On Lymph Node During Gastric Surgery
Going Into Maintenance Of Marginal BCell Lymphoma. Done 6 Months Treatments With Rituximab And Bendamustine. Last Treatment April23/24. Now
Now still having debilitating fatique. Is this the norm. How long might it last…hope someone can help me with this. 🙏
Keep the force..
Three years later I still have fatigue though less severe. It's hard for others to understand why we just can't get over it, no, it's real. Be kind to yourself and rest all you want, and at times… read more
I Am Curious To Know How Many Have Relapsed From NHL. Mine Came Back About 10 Years After Battling Defused Large B Sell NHL. Second Time Was
in remission again.
First diagnosed with NHL in my brain in 2006. Had surgery to remove a large tumor
Came back 2 years later in my parotid gland and had 15 radiation treatments.
Thought that would be the end of it… read more
I Was So Close To Complete Remission, 4 Years When It Relapsed. Has Anyone Received Positive Results With Second Line Treatment/therapy?
😇🥰
What Does Being In Remission Mean ?
I have MCL and just recently had a 3rd PET scan which showed I was significantly improved. My oncologist told me I was in remission and I was to start maintenance therapy on 6/12. I have a Doctor appointment the same day before this to explain all of this. Till then my anxiety and a new anger issue has arisen. I think I read too much and haven’t figured out what “remisssion “ means. Are they trying to keep the lymphoma from coming back or are they trying to prolong my life. Very confused and I… read more
Great news 👍.
I Have SLL And I Am On 400mg Of Venclexta A Day. Does Anyone Else Take Venclexta For SLL? And If So, What Is Your Maintenance Dose ?
My Oncologist told me after my last scan that i will most likely have to stay on this Drug for the rest of my life. Anyone out there with SLL that has successfully come off all Cancer meds after reaching remission ?
Yes, I also had to reduce the Ventoclax to 200 mg. I had a cat scan and it looks like I will go off of it end of November. I thought I sprained my ankle a couple days ago but from your experience I… read more
Has Anyone Had CAR-T My Encologist Jas Sent In Request As I Have Had 2 Failed Chemos For Non Hodgkins Fellicular Lymphoma
I’ve had CAR-T (6 rounds of maximum dose for my weight) followed immediately with fifteen sessions of radical radiotherapy and now on eight weekly injections of rituximab for two years. I’m in… read more
Lymphoma Stage
I noticed my oncologist has down graded my lymphoma to stage 1. But on PETscan it was clearly bigger and spread ,now in inguinal nodes bilaterally, extertilliac chain,axilla and abdominal.And have symptoms which will not say they are because of lymphoma
Does anyone know why he would do this?
I haven’t had treatment at all, he won’t give it yet. All he keeps saying is he has seen patients with more and nodes hanging off.
Thank you. I found that he had done that in portal, so when I see him again I will ask.
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