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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do Beverages With Caffeine Affect Your Lymphoma?

By A MyLymphomaTeam Member 68 answers
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Do You Follow A Specific Diet To Help With Lymphoma?

By A MyLymphomaTeam Member 38 answers
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Are You Frustrated With Finding Effective Treatments For Lymphoma?

By A MyLymphomaTeam Member 44 answers
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What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 45 answers
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2193 questions

Is This The Best Way To Share "outside" Resources?

A MyLymphomaTeam Member asked a question 💭
Palm Harbor, FL
A MyLymphomaTeam Member

Great! Thanks

January 14, 2024

Does Anyone With Lymphoma Have Any Experience Or Knowledge Of CAR T Cell Therapy?

A MyLymphomaTeam Member asked a question 💭
Canada, CO
A MyLymphomaTeam Member

Amazing news Joe!!! My husband starts his very first Chemotherapy not next week but the week after! Our journey begins. He is enrolled in a clinical trial. Getting his first Pet Scan next week. He has… read more

November 4, 2023

Can Car T-cell Therapy Be Used On All Types Of Lymphomas. Can It Be Used As A First Treatment?

A MyLymphomaTeam Member asked a question 💭
Canada, CO

Have A Question About Contraindications Between BTKI And Osteoporosis Or Osteopenia Drug?

A MyLymphomaTeam Member asked a question 💭
San Digo,CA

Does anyone in the active treatment of Lymphoma, with BTKI need treatment for osteoporosis or osteopenia has been warned by the Oncologist or a pharmacist about the contraindications and side effects of drugs used? Appreciate sharing your experience
This is what I have read recently which has scared me about the treatment.

Conclusion
In conclusion, DDIs are often very complex and dependent on multiple factors. But, if only data from strong CYP3A inhibitors or inducers is available, in the case… read more

Has Anyone Had A Nodule Show Up In Chest With Routine Pet Scan?

A MyLymphomaTeam Member asked a question 💭
Newton, NC

I had DLBCL and have been Cancer Free for 2 years! Pet Scan Showed 5mm nodule in medial right anterior subcutaneous. Also Slight uptake in the palatine tonsils. Just wondering if anyone has had this and what if any testing was done.

A MyLymphomaTeam Member

Hi Kat1120
I was diagnosed in July with DLBCL after a tonsil swelled up really big. Had the tonsillectomy and the DLBCL was in both tonsils and 2 lymph nodes in my neck. Pet Scan. Also picked up a… read more

November 4, 2023

My Husband Was Diagnosed With DLBCL

A MyLymphomaTeam Member asked a question 💭
Austin, Texas, TX

His is a triple hit, stage 2. He just finished treatment #5 of 6. RCHOP chemo. Biopsy was done last Friday, The report shows unchanged. It is only in his right groin lymphnode. We are so grateful for that. He caught it early thank God. He was told his is extremely rare and very aggressive. He is still working and doing well considering what he's going through. My question is:
He is experiencing extreme dizziness when standing and walking. Has anyone has this side effect?

A MyLymphomaTeam Member

CindyBlow
Hi!! I hope the clinical trial goes well for your husband. And, that that spot is just scar tissue. So glad your husband is doing great. You made my day he as hearing that!! I hope you… read more

February 29, 2024

Covid Shots

A MyLymphomaTeam Member asked a question 💭
West Columbia, SC

im on radiation therapy right now, 3 more then going to have Immunotherapy, can i get covid shot and flu shot at same time?

A MyLymphomaTeam Member

I completed chemo and finished radiotherapy 22 March 2024, had Covid and Flu boosters last week , so far no side effects 😁

October 4, 2024

How Long Do People On Methotrexate Stay In Remission?

A MyLymphomaTeam Member asked a question 💭
Hemet, CA

I was diagnosed with stage 1 b CTCL Mycosis Fungoides Nov. 2017, started methotrexate Dec. 2018, and am in remission since early 2023. They say you never really get rid of this type of lymphoma; you'll die with it, not from it. So, on average, how long do people stay in remission?

A MyLymphomaTeam Member

Yes, I do exercise daily, try to eat healthy, and do Calm, which is a meditation app, as well as Tai Chi. I was just curious about time frame of remission.

October 6, 2023

Immunotherapy Program?

A MyLymphomaTeam Member asked a question 💭
Italy, TX
A MyLymphomaTeam Member

What kind of treatment?

October 1, 2023

Good Evening, My Husband Failed The Car T And We Are Preparing For Allo, I Don't Know What To Expect,we Stay In Greece

A MyLymphomaTeam Member asked a question 💭
Greece, NY
A MyLymphomaTeam Member

Thank God there is another treatment he can try. Did he have dlbcl?

October 1, 2023
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