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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyLymphomaTeam Member 26 answers
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What Tips Do You Have To Help With Seasonal Allergies?

By A MyLymphomaTeam Member 34 answers
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What Lessons From Your Lymphoma Experience Are You Applying In 2024?

By A MyLymphomaTeam Member 77 answers
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What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 45 answers
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2199 questions

Hi All Just A Question On Lymphoma Symptoms In The Abdomen ?

A MyLymphomaTeam Member asked a question 💭

I had my biopsy results which were taken from my groin . The result was that they wanted to do a FISH test to see what subtype it could be . I already have follicular lymphoma and within the past week have had bad heartburn and the last couple of days or so my abdomenal area feels really sore and very uncomfortable 😣 Are there any concerns regards this ? I have another review on Monday and would guess that I will get the results from FISH however would like a heads up from anyone who may have an… read more

A MyLymphomaTeam Member

Please be sure to talk to your oncologist about these concerns.

August 21, 2023

What Makes The Additional Diagnosis Of Intravascular More Challenging When U Have Diffused Large B-cell Lymphoma Of The Liver

A MyLymphomaTeam Member asked a question 💭
Laguna Niguel, CA

Diagnosed With CLL Jan22. Platelets Are Now 145. Generally, How Longer Does It Take For The Disease To Become Active?

A MyLymphomaTeam Member asked a question 💭
Sierra Vista, AZ
A MyLymphomaTeam Member

It already is active. Or maybe I should ask, What do you mean by active?

October 10, 2023

Is Anybody Taking Brukinsa?

A MyLymphomaTeam Member asked a question 💭
San Sntonio, Tx

Just wondering if any oncologist has prescribed a BTK blocker for NHL?

A MyLymphomaTeam Member
September 11, 2023

Do You Really Wait And Do Nothing When You Are Stage 2a With Nodular Hodgkins Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Mesa, AZ

High CRP, High Absolute Neutrophil Count And Elevated WBC's.

A MyLymphomaTeam Member asked a question 💭
Orlando, FL

Can high CRP, high absolute neutrophil count and elevated WBC's cause a relapse of High Grade B cell Lymphoma? I am in remission (last chemo was over a year and a half ago). I have not achieved full recovery. I am always fatigued and SOB. Many thanks.

A MyLymphomaTeam Member

Hi DianneRose
Well that sounds like some good news. As far as the oxy....you're right they get pissie about any painkiller now a days. But I would bring it right back at them, I have freaking cancer,… read more

August 23, 2023

Tell Me More About Mantle Cell Lymphoma.

A MyLymphomaTeam Member asked a question 💭
Whitemouth Manitoba Canada
A MyLymphomaTeam Member

LLS has information on Mantle Cell.

May 31, 2024

Does Anyone Else Have Squamous Cell Carcinoma Outbreaks And Also Have Non-Hodgkins Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Pittsburgh, PA

I spent 6 months with treatment for Non-Hodgkins Lymphoma in 2019 and was declared "in remission"? Repeated scans have been okay since then but these squamous cell carcinomas continue to pop up on my legs. They were inactive during the time of treatment. Its frustrating and I would love to connect with patients who endure a similar situation. Thanks!

A MyLymphomaTeam Member

I understand your frustration. See my post above about sebaceous carcinoma. The lesion on my face was originally diagnosed as sebaceous hyperplasia. During DLBCL chemo it started to change and was… read more

August 13, 2023

Newly Diagnosed

A MyLymphomaTeam Member asked a question 💭
Chicago, IL

Hello all

I was diagnosed with DLBCL 3 days ago. Still waiting for FISH studies to come back prior to treatment.
I am a heart transplant recipient 20 years ago.
I am nervous about what’s the come and wondering if there’s others on this board that have gone through similar.

A MyLymphomaTeam Member

Thanks , for your reply. I guess this is life and we need to make some lemonade.

I also think a lot of my nervousness comes from reading articles and studies online. I know everyone is different but… read more

August 5, 2023 (edited)

I Went Through R-EPOCH For 3H LBCL, In Remission Now, Wonder How Long Will It Take For Platelets And And Hematocrit To Get Normal?

A MyLymphomaTeam Member asked a question 💭
Oakron, Virginia
A MyLymphomaTeam Member

Greg
It took me a couple of months to get back to low normal. I too had R-EPOCH followed by methotrexate intrathecal x 4. I cycle regularly and did during chemo but lost a lot of strength and… read more

August 4, 2023
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