Questions & Answers

I read an article here in reference to those who have lymphoma having pain daily--I too live with pain daily. It also stated that CBD and medical marijuana as been two of the medicines used for the pain. I do understand that not all states have passed the law for the medical marijuana. And I think it`s sad that some can`t get this relief from such. I am in a state (NC) which sadly has not passed the law,so we can only have CBD oil with the 3% or less of the THC in it. I guess some is better… read more

I know the experience can be significantly different from person to person, but what has been yours? I’d like to get back to work sooner than later but I’m being told that may not be realistic during treatment. Thanks in advance. Frank

I have been diagnosed with Splenic Marginal Zone Lymphoma in March. I’m doing “watch and wait” but I think I might go for the treatment because all I do all night is sweat and I get every virus that comes near me. I want to feel better. Is it work it?

I have nodes on right side of my neck that are enlarged. 5 have been removed. My only symptoms are jaw pain and ear pain (right side only). It is not TMJ. Bone marrow test came back abnormal.

Anyone else experience this?

The doctor suggested that I take it orally for 1 year because it penetrates the blood brain barrer. I had cns lymphoma so this would prevent that from returning. The doctor said to take my time with the decision & I need some time without medication.
Thanks!
Mary

There’s a standard plan for Revlimid and rituxin for 12 months. I’m on them for 18 months. Is there a standard plan (infusion intervals, dosage changes etc) for 18 months?

No B-symptoms, no elevated LDH,… all protein blood tests in normal range.

Discussion 3 or 4 cycles of R-CHOP. Any experiences or information what to choose?

Hi all, I have been diagnosed with stage IV HL and i could feel there's a mass at my lower left back area. Also, at the right groin i could feel small lymph node but the pain comes and go. Currently on alternative treatment since I've relapsed twice (did ABVD the first time diagnosed, radiotherapy second time relapsed and now third time, thus why i chose alternative treatment this time around). I do not look like I have cancer but beneath my exterior I have been struggling with pain/can't even… read more