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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Lymphoma Symptom Surprised You The Most?

By A MyLymphomaTeam Member 84 answers
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What's A Common Misconception About Lymphoma?

By A MyLymphomaTeam Member 65 answers
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What Does Being In Remission Mean ?

By A MyLymphomaTeam Member 43 answers
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Are You Frustrated With Finding Effective Treatments For Lymphoma?

By A MyLymphomaTeam Member 44 answers
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2201 questions

Plasmablastiod Lymphoma

A MyLymphomaTeam Member asked a question 💭
Brick, NJ

Within the last week my wife was diagnosed with lymphoma. A biopsy of a node from the neck was taken, but the results came back inconclusive, but mentions Plasmablastiod. Biopsy has been sent to John Hopkins for analysis. Only current symptoms are stomach pain, swollen lymph nodes in neck and abdomen, and constipation. Anyone have an experience with this possible diagnosis?

A MyLymphomaTeam Member

Louie2,
Hi! So glad you received a diagnosis and your wife is starting her treatments. Make sure you too are getting enough rest as her support person. Kelly

July 14, 2023

Has Anyone Been On Imbruvica For At Least A Year?

A MyLymphomaTeam Member asked a question 💭
Swampscott, MA

I have been taking Imbruvica for Waldenstroms for a year and my labs have improved but I wonder about side effects since I’ll be on it for the rest of my life (I am 80). I watch my diet and exercise, hoping to get back to feeling “normal” and will be pretty good energy-wise for a couple of weeks and then not feel well for two or three weeks with fatigue, itching, light headedness, low grade late afternoon temps, tired legs and hips, and now I have tinnitus. Compared with what other lymphoma… read more

A MyLymphomaTeam Member

Thanks Bill. I have the brittle nails and bruising too. So glad to know it’s working for you.

July 23, 2023

Testicle Lymphoma

A MyLymphomaTeam Member asked a question 💭
Croatia

Anybody here with this type of lymphoma?

Anybody Here On Calquence? Are You Experiencing Side Effects?

A MyLymphomaTeam Member asked a question 💭
San Sntonio, Tx
A MyLymphomaTeam Member

Melinda
Great to hear that the culprit wasn’t side effects of the calquence. Hate to hear about the colitis. Hope it gets cleared up soon. You’re a real fighter. Hang in there. I’m not on the med but… read more

July 30, 2023

When I Was Diagnosed, I Didn't Feel Sick At All And For Quite Awhile After Diagnosis I Felt Perfectly Fine But That Changed !!!

A MyLymphomaTeam Member asked a question 💭
PSL, Florida

Anyway I have noticed that when you tell the docs it's like they must hear it all the time & they just don't respond! I'm kinda used to it because it's happened with multiple organizations & doctors ! I know I am doing well with all of the blood I have donated for their inspection but I was wondering if anyone else noticed it or is it just in my head???

A MyLymphomaTeam Member

Unfortunately, you will not feel well. I understand that you will not feel well for months after TX. Just be thankful your alive and let your body get well.

July 1, 2023

Has Anyone Here Been Thru CAR-T Cell Therapy At Stanford? My 30 Yr Old Son Will Be Starting Soon. I Am Scared To Death. DLBCL

A MyLymphomaTeam Member asked a question 💭
Santa Rosa, CA
A MyLymphomaTeam Member

Thank you Kelly. Needed to hear that today.Our first appointment is next Wednesday.

July 1, 2023

For The Last Three Days I’ve Had Terrible Hot Feelings Rushing From My Feet All The Way To My Head. It’s Like My Whole Body Is On Fire.

A MyLymphomaTeam Member asked a question 💭
Williamsburg, VA
A MyLymphomaTeam Member

I found out they were panic attacks. I haven’t had one since I mentioned it earlier. My oncologist said things look fine after my MRI. I’m going to talk to a therapist next week. Hopefully, it… read more

July 27, 2023

Bloated And Constipated.

A MyLymphomaTeam Member asked a question 💭
Boksburg, ZA

Hi, what can I give my husband, he can't eat anything, he is bloated and it's causing a lot of pain.

A MyLymphomaTeam Member

I used a tea called Smooth Move. You can find it in most grocery stores and Wal-Mart in the tea bag section.

July 2, 2023

What Is A Lymphoma Corpse ?

A MyLymphomaTeam Member asked a question 💭
Sacramento, CA

What is a lymphoma corpse and will it be absorbed by the body?

A MyLymphomaTeam Member

Sorry, I meant absorbed by the body.

July 1, 2023

Has Anyone Used A Cooling Chemo Cap And Did You Find In Helpful In Minimizing Hair Loss?

A MyLymphomaTeam Member asked a question 💭
Manassas, VA
A MyLymphomaTeam Member

I’ve had 3 rounds of 6 and have not lost my hair as the oncologist had informed me. The oncology nurses were fantastic and seemed more in tune with what I should expect. Based on the oncologist’s… read more

November 28, 2023
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