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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Treated With R+bendamustine More Than Once?

A MyLymphomaTeam Member asked a question 💭
Gaithersburg, MD

I had treatment with Rituxan and bendamustine followed by Rituxan maintenance. This was well tolerated and gave me five years remission. Now the indolent lymphoma (NMZL) is back. My Dr says I can’t do that treatment again. Just wondering if anyone had more than one set of treatments with bendamustine. If not, what was the treatment after a relapse? I am finding little information about relapsed NMZL. Thanks

December 5, 2019
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A MyLymphomaTeam Member

I came out of remission with mantle cell lymphoma. They have me on Calquence and Vent? Something. Both oral chemo. So it’s doing ok

December 6, 2019
A MyLymphomaTeam Member

I did the Imbruvia, it worked well for me. Then after I think 8 months I told the doc I had bad short of breath. Ended up it damaged my lungs. So this last time both Calquence and Venclexa were given to me. Same issues, now my lungs work 40 %.

April 22, 2020
A MyLymphomaTeam Member

I have relapse MCL, and I will be getting both of those drugs the beginning of May. The Rituxan and I don’t get along, so I have to be admitted for them to give it to me. But this is my last dose of this. They say I’m at the end of treatments. Luckily I have an appt at Cleveland Clinic on Monday to see if I qualify for CAR T.

April 22, 2020
A MyLymphomaTeam Member

I found this: In 2017, the US Food and Drug Administration approved ibrutinib, for the treatment of relapsed/refractory MZL based on pivotal open-label Phase II trial demonstrated an overall response rate of 48%, with a complete response rate of 3%, median progression-free survival of 14.2 months, and median overall survival not yet reached at a median follow-up of 19.4 months.
Here:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC58...

Not sure of it's relevance to you, I'm new to all this.

April 21, 2020
A MyLymphomaTeam Member

My husband finished 6 months of R-CHOP 15 months ago. He also had pneumonia during the treatments and after 5 months, they had to wash his lung out. He lost approximately 40% of his lung function due to scarring from the pneumonia. His fatigue is still a problem and I think part of it is from the lung damage.

December 15, 2019

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Has Anyone Done Rituxan With Chemo? What Were The Side Effects?

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What Are The Side Effects Of Bendamustine And Rituximab?

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Waikanae

Just Finished 2nd Round Of: BR Bendamustine And RiTUXimab (RUXIENCE) Any Side Effects That Anyone Has Encountered?

A MyLymphomaTeam Member asked a question 💭
San Marcos, TX
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