I was diagnosed with DLBCL 3/2019 which had developed from transformed follicular lymphoma- I still had both cells in my tumor and also a micro cell of papillary thyroid cancer- so I basically had three at one time. I had the lymphoma tumor removed (10cm- completely encased in my thyroid) and although my post op pet scan was clear I was advised to do chemo- so I did 4 cycles of RCHOP at Fred Hutch in Seattle. At the recommendation of Dr. Westin @ MD Anderson ( I went for a second opinion prior to starting chemo) I needed to only do 4 cycles vs. the standard 6 based of the efficacy results of a clinical trial (Flyer trial 12/2019) - That was 4 years ago. I am still cancer free ❤️

I was originally diagnosed with Waldenstroms-- lymphoplasmacitic lymphoma and it then transformed to a second type, DLBCL. I have been in remission from both for two years, although my most recent PETSCAN found a hot spot in my colon. I am waiting for a biopsy to report to see if it is lymphoma or infection/inflamation. (Follow-up note:The Biopsy is negative- but I appear to have strictures most likely related to radiation to sacrum and chronic infection)

Yes, Hodgkins and Non-Hodgkins. One is more aggressive. I had a bone Marrow Transplant (my own) and am in remission about 4 years.

I was first told I had a meningioma tumour on the lining of my brain. The neurosurgeon took that out and did a biopsy and told me I had follicular lymphoma. The oncologist he referred me to did full PT scans and told me that I had tumours in various parts of my brain and sent me for more tests and a biopsy which revealed I had DLBCL in my hip and groin tumours and in other places. Christmas holidays slowed things down but further tests revealed I actually have double hit non Hodgkins Lymphoma which is only recently recognized as a distinct strain as it's rare and it's very difficult to treat. Imagine a series of diagnoses each one more disturbing than the last, all in less than 4 months. Now I am on R Chop but they will test again after next session and see whether to continue or change tactics.

Yes in 2001, Large Cell type B. Cancer free for 22 years. 2023 small cell type B, non curable however in remission and getting maintaince treatments every 8 weeks.