I was diagnosed with DLBCL 3/2019 which had developed from transformed follicular lymphoma- I still had both cells in my tumor and also a micro cell of papillary thyroid cancer- so I basically had three at one time. I had the lymphoma tumor removed (10cm- completely encased in my thyroid) and although my post op pet scan was clear I was advised to do chemo- so I did 4 cycles of RCHOP at Fred Hutch in Seattle. At the recommendation of Dr. Westin @ MD Anderson ( I went for a second opinion prior to starting chemo) I needed to only do 4 cycles vs. the standard 6 based of the efficacy results of a clinical trial (Flyer trial 12/2019) - That was 4 years ago. I am still cancer free ❤️

I was originally diagnosed with Waldenstroms-- lymphoplasmacitic lymphoma and it then transformed to a second type, DLBCL. I have been in remission from both for two years, although my most recent PETSCAN found a hot spot in my colon. I am waiting for a biopsy to report to see if it is lymphoma or infection/inflamation. (Follow-up note:The Biopsy is negative- but I appear to have strictures most likely related to radiation to sacrum and chronic infection)

Yes, Hodgkins and Non-Hodgkins. One is more aggressive. I had a bone Marrow Transplant (my own) and am in remission about 4 years.

Yes in 2001, Large Cell type B. Cancer free for 22 years. 2023 small cell type B, non curable however in remission and getting maintaince treatments every 8 weeks.

I was treated for follicular lymphoma last after I relapsed from 14 yrs ago, but also had marginal zone and smoldering myeloma in my biopsy. the Bendamustine that I got last yr might have slowed those 2 down a bit. Time will tell! keep the faith!