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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Refused Treatment. Opted For Palliative Care And A Assisted Death?

A MyLymphomaTeam Member asked a question 💭
Santa Cruz, CA

Where are the stats on how long you live without treatment ? How many people out of a Drs client base decide NOT to do Chemo?
where is info on how many people decide not to treat or give up on treatment. Anyone think treatment is worse the disease ?
Some NHL's are not curable. I want to know how those people deal with their life, Hospice and pain control.
Anyone besides me considering not treating.
I can't be the only one.

July 3, 2022
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A MyLymphomaTeam Member

Chemo is not that bad. Mind over matter, if I don't mind it doesn't matter. A positive attitude helps a lot. 14 yrs ago my lymphoma was everywhere in my torso, bone marrow and in at least 3 organs. I was 62. Without chemo I would have been dust long ago. I never considered not getting it for a sec., and not now either, I relapsed after 14 yrs. I hope to live a lot longer, and I am strong and healthy--except for that. Live each day the best you can. Life is precious.

October 22, 2022
A MyLymphomaTeam Member

Definitely mind over over matter and I matter!! Did chemo infusions and pills, and might have to do it again after my next CT next month. Have been maintaining for last year, but few lymph nodes starting to raise their ugly heads again. As hard as it is sometimes, I'm not ready to give up yet. I have too much to go on for. God will provide the way. Blessings to you and your decision. Positivity is a frame of mind. Try it. Hugs💚

December 21, 2022
A MyLymphomaTeam Member

I am told that my nhl is incurable but treatable. I have finished 6 months of chemo BR and now I’m in maintenance for 2 years. So far I have been managing good. We will see what my ct scan in June says as I have been having some swollen lymph nodes again and pain in my spleen. I feel better now than before the chemo. I am still young at heart and have to much to live for . I will not throw the towel in just yet!! I won’t let cancer win!!

May 26, 2023
A MyLymphomaTeam Member

This is a very personal decision as the comments attest.
I am 77 -- in good health except for Waldenstroms which never caused much more than fatigue, headaches and occasional poor balance.
Though the doctors can't predict anything - my Onc kept using the term re: chemo/rituxan - "expect good results".
I'm in the middle of my treatments and this is not easy - 1 horrible week, 1 bad week, 2 better weeks between treatments.
My life is worth the price.

Good Luck to all of us.

Joe3

February 11, 2023
A MyLymphomaTeam Member

I had a Pet scan Wed and I am in remission again, the 2nd time in 14 yrs. Chemo was harder this time than 14 yrs ago when I was only 62, but worth it. Yea!!! :Every day is a blessing!

January 27, 2023

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