I’m so much better after Rituximab treatments and consider them life saving. I did not have a lot if side effects but even if I had I would have gladly suffered them in return for the almost immediate relief from fatigue, unsteadiness, and bone pain I was experiencing.

What kinds of side effect you have after treatment with rituximab? My oncologist claimed there should be no side effects from Rituximab….I am in remission since 2021 after 5 rounds of rituximab but developed auto immune, RA , neuropathy and extremely fatigue since the infusion.

Yes cancer is in my bone marrow. I have had Waldenstoms marrow cancer producing Large B cell issues... (IgM ,and IgG are monitored carefully every 3 to 6 months.) Cancerous cells attacking my healthy cells. Then the Rituxin immunotherapy kills the cancer cells.
The cancer cells attack healthy cells which coagulate and my blood thickens. Causing dizziness, inflammation, fatigue, body n bone pain, and loss of appetite. The first 6 month 16 hour 2 day infusion was Treanda with Rituxin 2011 and just Rituxin 2nd infusion just 6 month of 3 hour a month in 2020. But I got Covid while on Rituxin in Feb 2020. It caused Emphysema and long hauler Covid. Rituxin was excellent and did not bother me at all otherwise. I was 48 years old when this all started. I'm now 62. My fibromyalgia or bone pain (neither confirmed) has just recently started to bother me 12 months ago. I take Tramadol for pain when needed. Warm bags and ice packs for my inflammation in my joints. Neuropathy in my feet too. It's just a bit irritating is all. Cancer is well under control. I still lead a decent life but the biggest problem is getting good deep healing sleep. I do light workouts and swim, walk bicycle . I have always had a healthy diet. Very important to stay away from sugar and nitrates , artificial flavors, and fatty fast food alcohol and cigarettes.
Fatigue and insomnia from mild to moderate pain have been common for the last 12 months.
I was also in excellent physical health. I was a lifetime runner, triathlete and swimmer, and cyclist. Never smoked or drank, and Doctors were always amazed at my fitness. They told me it helped a bunch to fight the cancer. I worked outdoors a lot in freezing Temps as a General Manager in the Airline Industry. I got pneumonia in 2007, and my immunity was low and compromised during a 2 week stretch with intense airplane emergencies I had to deal with. It took nearly 3 years to find the cancer.
The Doctor I had then was terrible. He did not even do a Complete Blood Count on me in the 3 years I was seeing him. I took a year off work, moved to Albuquerque, from Buffalo NY and the first doctor I saw found pneumonia and cancer. He was highly irritated with my former doctor. My genetic code was altered and flipped a cancer switch in my body. I was near stage 4 cancer numbers. Im in near complete remission now. It was most likely due to environmental problems. Pesticides, as a golf course assistant manager/pro and summer teacher for 12 years, was most likely the cause.
I had summers off paid from my regular airline job. So I worked year-round 60 to 70 hours and did not get enough rest. Rituxin worked excellent. I would not be a bit worried about it.

Hi, I was also diagnosed with MZL stage 4. However, the Pathologists sees it as Walderström M and that code is used. That was almost a year ago. Also have 19% cancerous B cells in my bone marrow and blood. Also still on watch and wait. Am tired, face very puffy and I get sores. Sometimes some bone pain for a fleeting moment. Would like having you on my team.
Huldah

I have B cell Lymphoma in my bone marrow had chemo and went into remission 3 times. I have had it 2014 it’s not cureable only treatable Right now I’m trying a trial pill called Jayprica so hoping it helps. I also got a second opinion. Unfortunately I found we have to be our own advocate.I didn’t have any symptoms either. I wish you the best.