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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

CLL/SLL Lymph Node

A MyLymphomaTeam Member asked a question 💭
Waterford, MI

Hi, So in January 2023 I was diagnosed with CLL, no symptoms. I went for my six month check up and my symptoms are tiredness & My lymph nodes along my jaw line neck back of the head are prominent. Doctor tells me if they stay like that in three months he believes I should start treatment. That I may have SLL which is more aggressive. Not sure what to do as anybody else experienced this. I’m scared.

July 27, 2023 (edited)
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A MyLymphomaTeam Member

I have SLL my oncologist never told me it was more aggressive it’s treated the same as CLL my oncologist told me I won’t die from it..I am taking Brukinsa for it and so far I am doing good hardly any side effects don’t be scared I had enlarged lymph nodes in my neck and under my arms..I couldn’t take Calquence because it caused a rash or Imbruvica because of high BP…

July 28, 2023
A MyLymphomaTeam Member

Hi I was watch and wait for 4-1/2 years. I’m on acalabrutinib. I call it the miracle drug. Only side affect is muscle pain in my legs. But my blood work is back to normal. Just make sure you have a good oncologist. I go to MSK.

October 14, 2023
A MyLymphomaTeam Member

I am also in you position with the diagnosis in June of 2023. Watch and wait, but the lymph nodes may be causing some crowding in my lower abdomen and in my neck. I have moved my appointment from December to October to discuss Targeted Therapy options. Do not be scared. I just encourage you to stay on top of it, learn as much as you can and take charge. That kind of attitude has really helped me stay encouraged to win.
My prayers to you.💪

September 23, 2023
A MyLymphomaTeam Member

Thank you

September 23, 2023
A MyLymphomaTeam Member

Thank you for this information. It is helpful when I see him in a few months

July 29, 2023

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