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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anybody Taking Brukinsa?

A MyLymphomaTeam Member asked a question 💭
San Sntonio, Tx

Just wondering if any oncologist has prescribed a BTK blocker for NHL?

August 5, 2023
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A MyLymphomaTeam Member

I was diagnosed with WM in 2018. I did 6 courses of Bendamustine and Rituximab. It worked for about 30 months.

I have been taking Brukinsa for about 2 years. After my first 10 months on the drug my blood calcium spiked to a very high level and I took a 90 day reprieve from the Brukinsa.

I am back on the pills for about 6 months, and I am feeling very good.

August 13, 2023
A MyLymphomaTeam Member

Hi Matt
Thank you for your response. Good to hear that treatment is working well for you.

August 13, 2023
A MyLymphomaTeam Member

Yes...I been dealing with itching and bites. I thirsty and drinking alot of water and sometimes sleepy.

September 3, 2023
A MyLymphomaTeam Member
September 11, 2023
A MyLymphomaTeam Member

Oncology tied me that NHL is not curable but the meds just slow progression . He should report his shortness of breath to the oncologist.

August 6, 2023

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