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Relapse of diffuse large B-cell lymphoma

A MyLymphomaTeam Member asked a question 💭
Oklahoma City, OK

How many of you out there have had a relapse of large B-cell lymphoma after remission?

September 5, 2023
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Answer Summary

Members shared their varied experiences with diffuse large B-cell lymphoma relapse, with timelines ranging from just three months after... Read more

Members shared their varied experiences with diffuse large B-cell lymphoma relapse, with timelines ranging from just three months after initial remission to nearly two years post-treatment, while others continued fighting without achieving remission at all. Several members described successful outcomes with CAR-T cell therapy at MD Anderson, with one member reporting being cancer-free and told they were more likely to die of natural causes than have the cancer return, while others shared undergoing multiple treatment rounds including R-CHOP, radiation, and preventative spinal methotrexate infusions. A recurring theme was the community's mutual support through sharing scan dates, offering phone numbers for direct connection, and expressing hope and prayers for one another as they navigated the uncertainty of relapse and the determination to keep fighting.

A MyLymphomaTeam Member

I went to MD Anderson this summer for Car T cell treatment. I left in August cancer free. The doctor told me that I'm more likely to die of natural causes than the cancer to come back!!

December 23, 2023
A MyLymphomaTeam Member

Not as bad as 6 chemo treatments. There are side effects dealing with the brain, as I was admitted to ICU, but was better the next day. Some take 4 or 5 days to recover!!

December 25, 2023
A MyLymphomaTeam Member

I have never gone in to remission. I am on my 4th treatment and go to Iowa City tomorrow for a PET scan and consult. I was diagnosed one year ago. I pray you stay in remission and stay healthy.

February 20, 2024
A MyLymphomaTeam Member

I had 5 radiation on 7c in neck Jan 4 2022 then 6 RCHOP and remission July2022 ,then took port out as caused blood clot in jugular in April so Ididnt have to stay on blood thinner when I had my first of 4 spinal infusion of methotrexate for prevention as he to.d me if it came back it would be brain and bones , I had 9 spots stage 4 , now 19 months remission, just had ctscan all well, so far so good at 80+😊😊😊👍👍👍

February 19, 2024
A MyLymphomaTeam Member

R-CHOP 6 treaments. Good for 9 months. Next try CAR T - good for 2 months. On my third Try. In 2 months will see the results.

February 18, 2024

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