I had loss of eyebrows and eyelashes, and pretty much neither have returned after 20 years. I truly had hoped that the eyebrow loss would be temporary but it has not remained so. But I am thankful that after 20 years I am still in remission, the eyebrows/eyelashes are a small compromise for remission!

Everyone keep going --the more you can move the better!!! make myself walk every day about a mile now I have to use a walking stick -I have fallen a few times- yes the balance and energy level is a issue and the bowels- I also get side kidney area cramps everyday if I push it(I am in the process of moving) 2 glasses of red wine at night is my treat no other sugar. I have determined to live the fullest life I can and be happy every moment God gives me- done with being scared of diagnosis and treatment all ANYONE HAS IS THE MOMENT-everyone thinks they have tomorrow but do we? keep positive -be kind to yourself-surround yourself with people which truly like you-done with being defined with by my disease (I don't mention it to people who don't have this -they don't get it and it pushes them away.TAKE CARE😊

im telling you oatmeal bath and oatmeal lotion, just use plain oatmeal like you eat, get water hot and out a cup in water, it is to calm you down whole body wise, i itched so bad i was bleeding, it went away for years now,

Fatigue. It blindsided me.

Hi Greg, I have had a question about that myself. Granted, I am 75, and some aches and pains can be expected. I''m almost 6 months out of BR and I'm on maintenance Rituxin. It is only lately, the last couple months that I have felt like the tin woodsman, rusty and creaking in all joints, tendency to stumble, hard time picking up something from the floor, and my hip extensors are pitiful. I am cranking up my stretching, strength and cardio and that is my great hope.