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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Familiar With Romidepsin

A MyLymphomaTeam Member asked a question 💭
Buffalo, NY

Had an auto t-cell transplant with relapse and they want to use just romidepsin for treatment.

October 11, 2023
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A MyLymphomaTeam Member

Feeling better is everything! I had to skip consecutive treatments twice. Once due to low platelet count. One due to Thanksgiving staff shortage.

December 17, 2023
A MyLymphomaTeam Member

So far, I've been unable to Complete 3 treatments consecutively due to low anc levels. But I do feel better.

December 5, 2023
A MyLymphomaTeam Member

I have AITL stage III/IV Chemo did not put me in remission. My oncologist put me on romidepsin. After three cycles ( three weekly four hour infusions per month for three months). I had a pet scan and am in complete remission. But I have to continue the romidepsin indefinitely till it stops working. I find that despite the anti nausea drug prior to the infusion I still feel sick. I’ve learned to manage it by fasting on the day of the infusion for 24 hours. That helps.
Id love to hear how you do.
Vicki

November 27, 2023

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