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Anyone Diagnosed With CNS Lymphoma?

A MyLymphomaTeam Member asked a question πŸ’­
Albany, NY
November 12, 2023
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A MyLymphomaTeam Member

I had 2 rounds of matrix which led to lung clots and pneumonia so they wouldn't let me continue. But since then a course of whole brain radiotherapy has God rid of tumours but have now apparently got a brain abscess which is stable but not changing with lots of iv and now oral ABs. New MRi next week I think which might lead to them wanting to aspirate this thing to make sure of diagnosis.
Now home pretty fatigued but mobility improving daily (steroids since March have led to ridiculously weak legs ). And mild left eye sl9wness/queasyness but overall can't complain!

November 13, 2023
A MyLymphomaTeam Member

How are you doing? I'm in the hospital now finishing the last of 8 methodextrate/rutuxin infusions. Heading for either CAR-T or Allo stem transplant at MSK end of November.

Be well and feel free to stay in touch.
Debra

November 12, 2023
A MyLymphomaTeam Member

Yes. Since March. 2 cns masses. One don't and one cerebellar

November 12, 2023

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