Anyone Else With Waldenstroms Macroglobulonemia??
I was diagnosed 4yrs ago, but probably have had it awhile, I have had the Neuropathy for at least 10-12yrs. It was always considered as neuropathy of unknown origin. My labs are good, my IGm had actually gone down a bunch after immunotherapy and stayed down. We are doing the watch and wait thing. I have read that unlike the neuropathy associated with diabetes, with the WM the nerve cells aren't actually killed, but covered with proteins, and can actually be reversed. Has anyone had their… read more
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