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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Here Concerned About The High Out Of Pocket Costs Of Their Treatment? Anyone Refusing Treatment Because Of Cost?

A MyLymphomaTeam Member asked a question πŸ’­
Slapout, AL
January 3, 2024
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A MyLymphomaTeam Member

I am 77 years old and I am an American married to a Filipino and living in The Philippines. Right now I am on a Target Therapy drug, Ibrutinib, for Sll. I have been happy with this treatment and have experienced some good results. I wonder everyday if , as I grow older, what I would do if confronted with the need to have more expensive and invasive treatments. My husband is retired and blind and I really don't look forward to facing expensive and, in some cases, invasive and painful procedures. I wish you well!

January 10, 2024
A MyLymphomaTeam Member

That is a ridiculously high amount. I thought $6000 was way too much. That is why I have declined future treatments. The Feds need to step up and control these costs.

January 6, 2024
A MyLymphomaTeam Member

I have worked out a payment plan with the hospital. $7100 for last year. Get to start all over this year. They have billed my insurance over a half million dollars and I'm not done for another 18 months. Good grief

January 6, 2024
A MyLymphomaTeam Member

I am 80 years old, and I don’t see the point in having more treatments as I did Five years ago. They want to do it again, but I have no symptoms, so I refused. Last time it cost me $6000 out of pocket. Never again.

January 4, 2024
A MyLymphomaTeam Member

I have no idea,
U drop your job, run out of income and end up on Medicaid, this will cover the cost without any issues.
Otherwise your bills pile up, u are dead broke and the collection Agencies hunt u every day. The Nightmare starts talking.
Or u apply at Financial Assistance program with the Hospital systems cause they offer this and help u out.

January 3, 2024

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