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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Have Follicular Lymphoma That Doctors Are Just Watching And Waiting?

A MyLymphomaTeam Member asked a question 💭
Louisville, OH
January 28, 2024
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A MyLymphomaTeam Member

I’m on watch and wait for follicular lymphoma for a little over a year. Bloodwork , CT and PET scans. I got a second opinion and they agreed watch and wait was best. I’m hoping I can go a long time without treatment My lymph nodes have been increasing again but no B symptoms yet. My next PET is in April.

February 1, 2024
A MyLymphomaTeam Member

Yes, I am I see my oncologist every 3 months for blood work and discussion. It is a strange place to be waiting for cancer to start.

January 31, 2024
A MyLymphomaTeam Member

I have follicular NHL stage III.
I started Chemo last month and will have it every 4 weeks X 6 months
They offered wait and watch. But didn’t want to do that in my case. Every case is different though

January 30, 2024
A MyLymphomaTeam Member

I have an enormous amount of stomach issues. They said they don't think it's from my duodenal lymphoma. Where is your lymphoma?

January 29, 2024
A MyLymphomaTeam Member

They don’t treat if no severe symptoms. I had severe shortness of breath and large pleural effusion and did year and half immunotherapy. A year later I started chemo when it returned and progressed. Had three treatments and feel so much better.

January 28, 2024

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