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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Have Waldenstrom Macroglabulinemia?

A MyLymphomaTeam Member asked a question 💭
Peosta, IA
February 16
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A MyLymphomaTeam Member

Just had shoulder manipulation on uninjured shoulder n doing well so far, three days out!! PT is not fun, but it is certainly helping and the pain before has lessened and I can now move my arm some. 😊
I did get a “bruise looking” on back as result of manipulation, but no tenderness in that spot. 👍
Definitely keep up with pain pill schedule n exercises!

March 15
A MyLymphomaTeam Member

Have you had infusions to lower Igm count?

March 3
A MyLymphomaTeam Member

That’s not good about the after effects, I have lots of bone pain in my shoulder that I had operation on over a year ago, plus an extremely painful hip and ankle too,I think I would rather have the hair loss and less pain. What can you take for the pain? Hope you will improve 🙏🏽

March 13
A MyLymphomaTeam Member

I had chemo infusions of bendeca and rituxitab n only 4 treatments n not six as I was scheduled for. My numbers came down quickly. However, I have had some major after effects - right foot, ankle, knee and frozen shoulder.
No hair loss! 😊

March 12
A MyLymphomaTeam Member

Yes I have with the Rituximab

March 12

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