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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Diagnosed With Lymphoma Of The Mesenteric And/or Retroperitoneal Lymph Nodes As Only Location?

A MyLymphomaTeam Member asked a question 💭
Clovis, CA

Pet scan lit up for two 4cm x 3cm lymph nodes-SUV 14/16 (does that mean anything?) in lumpy lymphs near kidney and right next to outside of colon tissue -oncologist diagnosed lymphoma today but no type yet, biopsy this week if they can reach them. Pet scan says consistent with active lymphoma. Is biopsy the only true lymphoma diagnosis or can the Pet and MRI alone be enough? Conceded to his diagnosis but started questioning without biopsy. Is biopsy in this case for type only?

March 16, 2024 (edited)
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A MyLymphomaTeam Member

I understand-they did the same for me to diagnose. The biopsy went great and I’ve been in treatment for four months. I know how hard it is not to worry!

August 27, 2024
A MyLymphomaTeam Member

I am awaiting biopsy results for what is suspected to be primary mesenteric lymphoma. They 'diagnosed' me based on results from a CT and PET/CT. Though, biopsy is the official way to diagnose. It's like cancer limbo right now.

August 27, 2024
A MyLymphomaTeam Member

If you don’t find someone with same cancer type
You might find people have or are going through similar chemo program and might share the symptoms that arise from this.
Wishing you get answers soon

March 16, 2024
A MyLymphomaTeam Member

Cali-Carrie,
Hi and welcome to the site. Everyone on here is so nice, helpful and supportive. I have/had DLBCL and had treatments of RCHOP chemo. I've been in remission for 3 years. I hope your biopsy goes well for you. Kelly

March 16, 2024

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