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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have Daytime Sweats That Get My Hair Wet My Face My Upper Torso When I Do The Lightest Activity And It Stops You In Your Tracks

A MyLymphomaTeam Member asked a question 💭
Ocala, FL

My oncologist never asked what symptoms I am having his visits are 15 min ! And I try to ask question as I have RUNX1 familial rare platelet disorder related to multiple malignancies and have yet to be tested or treated and already having pulmonary embolism you would think ? The lab test and tx is under Pubmed ! It is discouraging and I am not going to be told to go to Mayo, Moffitts, UFShands the worse specialist that assume a patient is alcoholic rather than read the medical notes it is NAFLD… read more

May 5, 2024
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A MyLymphomaTeam Member

Hi Cathy - I highly recommend your making an appointment with a different oncology group. No need to share your experience you've had with the group with which you are currently a patient. Have access readily available to all most recent scans/lab reports. Since you are not feeling supported by spouse, perhaps a close friend will attend appointments with you. Wishing you the very best through this! - Mary

May 6, 2024

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