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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My First Older Oncologist , Said It’s Not Curable But Manageable. My New One Says That’s Not True I Am In Remission Almost Two Years

A MyLymphomaTeam Member asked a question 💭
Surprise, AZ

I left first one as his clinic when he was on vacation ignored my calls wound up driving self to ER and had a blood clot in Jugular from port😵‍💫😵‍💫😱😱😱

May 22, 2024
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Diffuse Large B-Cell Lymphoma: Symptoms, Diagnosis, Causes, and More Read Article...
A MyLymphomaTeam Member

AnnettaHurleyJutila,
I have/had DLBCL stage IV and see a Dr at Cleveland Clinic. She is a hematology oncologist. She said that it can be cured. If I get to 5 yrs she can say that I have as much chance of getting lymphoma as anyone else in the US. I've been in remission for 3 yrs. I have a Local oncologist that said something similar. Congratulations on your remission. Kelly

May 22, 2024
A MyLymphomaTeam Member

It might be because the avg age of 1st diagnosis keeps going higher. If you are diagnosed in your mid 70's, and go 10 yrs before relapsing, at mid 80's, we are over the avg life span. I am already past the avg life span. I get occasional night sweats, but I have a lot of energy and feel great. I was diagnosed at 62 and again at 76.

May 22, 2024
A MyLymphomaTeam Member

I am at Barrows in Phoenix, AZ and he says after 3 years he feels it’s over also

May 22, 2024
A MyLymphomaTeam Member

God bless you- well- He certainly has, hasn’t he? 😊🙌🏻

May 22, 2024
A MyLymphomaTeam Member

I went 14 yrs before I relapsed after being treated 2 yrs ago. 2008 I had stage 4 Follicular. 2 yrs ago my biopsy showed 3 kinds, Follicular was the main, marginal zone, also smoldering myeloma.

May 22, 2024

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