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Does Anyone Else Have The Diagnosis Low Grade B Cell Non Hodgkins Lymphoplasmacytic Lymphoma With IgG Paraprotein? Not WM

A MyLymphomaTeam Member asked a question 💭
posted July 26
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A MyLymphomaTeam Member
posted July 28
A MyLymphomaTeam Member

I was given Rituxin and Bendamustine.Two days every month for 6 months.The first time or 2I was very tired.Slept many hours.After that got used to it and felt much better.Not much hair loss and no problem with appetite.Headache was a problem so dr said I could take naproxin before the treatment and I was fine.i have been in remission for over 3years.No treatment since.good luck.

posted July 30
A MyLymphomaTeam Member

Thank you for the information on Rituximab treatments! Good to heat it doesn’t take too long to feel normal again!

posted July 29
A MyLymphomaTeam Member

It was my understanding only about 5% don’t have IGM - my younger brother also had nhl - he relapsed about 7 years after his first treatment - surgery, radiation and 3 rounds of rituxin- had RCHOP and has been clean since - some 15 years! Always hopeful .

posted July 28
A MyLymphomaTeam Member

Also, my diagnosis is not WM as I do not have IgM paraprotein. Feel like I’m on an island by myself.

posted July 27

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