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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Which Lymphoma Symptom Surprised You The Most?

A MyLymphomaTeam Member asked a question 💭
San Francisco, CA
August 21
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A MyLymphomaTeam Member

My first symptom was a slightly enlarged lymph node in my right groin. I thought it was infected. By the time I got to the doctor a month later, it had grown. CT scan, biopsy, and PET confirmed NHL DLBCL. Very active and never seriously sick in my life. Went from no cancer to stage 4 in 60 days. In my lymphatic system, liver, backbone, and bone marrow. 6 rounds of RCHOP worked. In complete remission in 6 months. But a PET 6 months later showed I relapsed. So my oncologist referred me to CAR T-cell therapy. 3 months later, PET showed it was working mostly, so “almost in complete remission.” In about 10 days I get another PET to see if the cancer is completely gone. I’m eager to get the results. I had complications from CAR T-cell infusion but it worked. Never give up hope.

August 30
A MyLymphomaTeam Member

It was all a surprise to me from the first call to the last treatment so far.. Thank God I'm in REMISSION for like 6-7 yrs.now!!

September 3
A MyLymphomaTeam Member

I had the night sweats as well. Thought it was menopause until I was diagnosed with Lymphoma. Turns out that is the first symptom listed when you look it up. I also had terrible headaches 7 years after initial diagnosis. Turned out to be Anaplastic Lymphoma. Had strong chemo for 4 months. Clear 3 years now.

August 31
A MyLymphomaTeam Member

I too had lots of leg and back pain. Most likely it was from an enlarged lymph node on my lower back. After treatment progressed it all went away....well almost. I have lower leg pain but this is different from sciatic type. My toes are affected and almost numb but good to go now!

September 4
A MyLymphomaTeam Member

Prayers for you I just went through stem cell transplant in June. So far it’s seems to worked

September 19

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