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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Since The Weather Has Changed And It Is Much Cooler, I Have Been Feeling 90% Better. Is This Somewhat Normal..??

A MyLymphomaTeam Member asked a question 💭
Atlanta, GA

Ready to start Brukinsa, and now I am second guessing the decision. When I went to my on a month ago, I was feeling really bad, and he said it was time to start based on how I felt. Part of me says don’t do it, but part of me thinks my body may handle it better if I am feeling a little better, versus feeling really bad, as I was all summer! Thoughts??

October 22
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A MyLymphomaTeam Member

Changes were very subtle. The primary reason for med shift due to headaches from old med. I could function normally, no sickness after Bruki start-up....

3 days ago
A MyLymphomaTeam Member

Richard, how often do you get checked by your oncologist to make sure your organs are not being damaged in any way? I got the feeling it would be monthly, at least in the beginning .

2 days ago
A MyLymphomaTeam Member

That’s wonderful! Thank you, Richard!

2 days ago
A MyLymphomaTeam Member

Hi all.
I've been taking brukinsa since Sept 2023.
Four pills a day. The first day or two I was dizzy but that has passed. I do get bruise like spots that go away in a few days. BUT I hike and cover 10K steps daily.
And I feel great. Previously I had 6 rounds of hyper cvad and spent 62 nights in the hosp. Right now I credit brukinsa and excercise for my seemngly good health.
Someone said, If I hadn't seen you last year I would never know that you were ever sick.
Be well.

2 days ago
A MyLymphomaTeam Member

Thank you ers, when you first started taking Brukinsa, were you able to function somewhat normal, or were you really sick at first? I’m just trying to prep for all this and I don’t know what to expect.

October 23

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