I tried maintenance and it came back during it. Since then I only use rituxan when it’s active and coming out of remission

KristiH,
Hi! Congratulations on your remission. I have/had DLBCL stage IV and had treatments of RCHOP chemo. Some people with DLBCL have follow up rituxin. I was never offered it. I've been in remission for 3 1/2years. My suggestion is if your Dr won't give you a medical opinion in regards to this decision get a 2nd opinion from another oncologist. Good luck on your decision. Kelly

I had RCHOP & radiation and was clean for 2 yr 8 mon and the Large B Cell Lymphoma returned. It was discovered at my 6 month follow up CAT Scan. Does your insurance cover the Rituximab? What's the % of cancer returning? With cancer relapse, I had chemo with Rituximab immunotherapy which as an injection in my stomach- no big deal anymore compared to the ultimate RICE & BEAM CHEMO that led to an auto stem cell transplant.

Thank you Kelly! That is good advice. Love my oncologist but not loving his vagueness on this issue, even though I understand that the data is mixed and there is probably no wrong answer. I just hate making decisions, Lol. Thanks for the kind words, and congrats to you on your 3.5 year remission!