I Have NHL B Cell And Am Watch And Wait. How Cautious Should I Be, In The Watch And Wait Phase, Regarding Protection Against Infection?
Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks
I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more
Any Information At All Regarding Mantle Cell Lymphoma Please? Thank You And Blessings 🙏🏼
LLS has some recourses that should be of help.
I Have SMZL And After A No Result Round Of RR They Are Going To Try A BTK Inhibitor. Wondering What Kind Of Experiance Anyone Has Had .
It's kinda funny but I had to go back 1 week after the results from the original blood test but now I gotta go back a week after the 2nd blood test so I'm not certain what the heck is going on. They… read more
Has Anyone Been Treated With Acalabrutinib Who Has SLL/CLL With TP53 Delete. How Long Was It Effective For?
Anyone Else Have Chronic Interstitial Disease?
OK more good news, NOT. I had another scan Thursday Dr. concerned about my gasping for air. Found out I have chronic Interstitial disease in my lungs. Anyone else experience this? Supposedly not curable, perhaps a lung transplant. Also I have a consult the 19th with surgeon to remove my spleen. Looks like it will be a busy spring. Many thanks.
Many thank yous, really appreciate you.
I Started Brukinsa Jan 25 And Have Had Severe Headaches Since .I Saw That They Are One Of The Side Effects . Anyone Else ?
Nothing I've been on. Hope they subside soon
How Often Does Large B Cell Lymphoma Come Back
How Long Does A Bloated Upper Abdomen ( Chemo Belly), Continue After Chemo Has Stopped ???? I'm Out Of Stage 3 Lymphoma Treatments.
Sure is a Q for your oncologist…I haven’t experienced this…
I’ve Had Cold/sinus Infections And Sore Throats For Last 3 Months, 3 Rounds Of Antibiotics And 2 Steroids. Could This Be Sign My Nhl Is Back
Diagnosis of NHL 5 years ago. Had Rituxan and chemo treatment 5 years ago and all has been good. And because of the treatment my immune globulin levels are very low. Had one infusion to help with that but it is a very pricey treatment. Looking into getting that again as well.
Core Needle Biopsy Results Came Back As Inconclusive. My Spleen Will Be Removed And Sent To Pathology Lab To Do Further Tests.
Anyone been through this before? I’ve heard even testing the spleen cells can be inconclusive. What gives in this situation?
Many thanks Gene, you answered all the questions I had.