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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Are Your Top Tips For Dealing With Lymphoma In The Heat?

By A MyLymphomaTeam Member 45 answers
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How Do Beverages With Caffeine Affect Your Lymphoma?

By A MyLymphomaTeam Member 68 answers
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What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 42 answers
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Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

By A MyLymphomaTeam Member 48 answers
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2182 questions

I Have NHL B Cell And Am Watch And Wait. How Cautious Should I Be, In The Watch And Wait Phase, Regarding Protection Against Infection?

A MyLymphomaTeam Member asked a question 💭
Ontario, Canada

Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks

A MyLymphomaTeam Member

I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more

February 26, 2024

Any Information At All Regarding Mantle Cell Lymphoma Please? Thank You And Blessings 🙏🏼

A MyLymphomaTeam Member asked a question 💭
England uk
A MyLymphomaTeam Member

LLS has some recourses that should be of help.

May 31, 2024

I Have SMZL And After A No Result Round Of RR They Are Going To Try A BTK Inhibitor. Wondering What Kind Of Experiance Anyone Has Had .

A MyLymphomaTeam Member asked a question 💭
Elbow Lake, MN
A MyLymphomaTeam Member

It's kinda funny but I had to go back 1 week after the results from the original blood test but now I gotta go back a week after the 2nd blood test so I'm not certain what the heck is going on. They… read more

February 7, 2024

Has Anyone Been Treated With Acalabrutinib Who Has SLL/CLL With TP53 Delete. How Long Was It Effective For?

A MyLymphomaTeam Member asked a question 💭
Nottinghamshire UK

Anyone Else Have Chronic Interstitial Disease?

A MyLymphomaTeam Member asked a question 💭
Roanoke, VA

OK more good news, NOT. I had another scan Thursday Dr. concerned about my gasping for air. Found out I have chronic Interstitial disease in my lungs. Anyone else experience this? Supposedly not curable, perhaps a lung transplant. Also I have a consult the 19th with surgeon to remove my spleen. Looks like it will be a busy spring. Many thanks.

A MyLymphomaTeam Member

Many thank yous, really appreciate you.

February 5, 2024

I Started Brukinsa Jan 25 And Have Had Severe Headaches Since .I Saw That They Are One Of The Side Effects . Anyone Else ?

A MyLymphomaTeam Member asked a question 💭
Blue Anchor NJ
A MyLymphomaTeam Member

Nothing I've been on. Hope they subside soon

February 4, 2024

How Often Does Large B Cell Lymphoma Come Back

A MyLymphomaTeam Member asked a question 💭
Oklahoma City, OK

How Long Does A Bloated Upper Abdomen ( Chemo Belly), Continue After Chemo Has Stopped ???? I'm Out Of Stage 3 Lymphoma Treatments.

A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

Sure is a Q for your oncologist…I haven’t experienced this…

February 4, 2024

I’ve Had Cold/sinus Infections And Sore Throats For Last 3 Months, 3 Rounds Of Antibiotics And 2 Steroids. Could This Be Sign My Nhl Is Back

A MyLymphomaTeam Member asked a question 💭

Diagnosis of NHL 5 years ago. Had Rituxan and chemo treatment 5 years ago and all has been good. And because of the treatment my immune globulin levels are very low. Had one infusion to help with that but it is a very pricey treatment. Looking into getting that again as well.

Core Needle Biopsy Results Came Back As Inconclusive. My Spleen Will Be Removed And Sent To Pathology Lab To Do Further Tests.

A MyLymphomaTeam Member asked a question 💭
Virginia, Manassas

Anyone been through this before? I’ve heard even testing the spleen cells can be inconclusive. What gives in this situation?

A MyLymphomaTeam Member

Many thanks Gene, you answered all the questions I had.

February 22, 2024
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