Connect with others who understand.

Sign up Log in
Resources
About MyLymphomaTeam
Powered By
Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone With CLL And On A BTK Blocker (such As Acalabrutinib) And After And Had To To Discontinue The Use Of This BTK Blocker?

A MyLymphomaTeam Member asked a question 💭
Sebastopal, CA

I’ve been on Calquence (acalabrutinib) for 14 months with wonderful results for reversing the Nephrotic Syndrome my CLL was causing to my kidneys. Then earlier this month I developed EXTREME diarrhea for over 2 weeks. I was hospitalized to have a constant potassium/hydration infusion drip line for 5 days and a colonoscopy. I was also taken off the medication. The Drs can only explain that this must be a side effect of the medication. Does anyone know what are the next treatment options when the… read more

July 20, 2023
Be the first to like/hug
A MyLymphomaTeam Member

Sorry to hear you are having difficulty with Calquence. I've been taking Calquence for 10 months and besides a headache and skin rash the first 30 days I have no adverse reaction and it has improved my CLL symptoms dramatically.

July 22, 2023
A MyLymphomaTeam Member

I have CLL/SLL and MCL.
Everyone progresses differently.
But, I am 3 years remission, would not change a thing.
Chemo, diet change, essential oils and a lot of prayers put me where I am today.
I have some post chemo issues that I deal with
I feel very blessed and thank our Great Physician for everything 🙏

July 30, 2023
A MyLymphomaTeam Member

I was just diagnosed with CLL, SLL how bad will I start feeling? I have been getting a lot of nausea sometimes 3/4 days

July 22, 2023

Related content

View All

Anybody Here On Calquence? Are You Experiencing Side Effects?

A MyLymphomaTeam Member asked a question 💭
San Sntonio, Tx

Is Anybody Taking Brukinsa?

A MyLymphomaTeam Member asked a question 💭
San Sntonio, Tx

I Have Lymphoma And Leukemia. I Just Finished Chemo And Ventaclax. At This Point No Cancer Can Be Detected In My Body.

A MyLymphomaTeam Member asked a question 💭
British Columbia Canada
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in