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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Info About Waldenstrom?

A MyLymphomaTeam Member asked a question đź’­
Rohnert Park, CA

Hello
I was diagnosed with Waldenstrom
Christmas Eve 2021. The oncologist told me over the phone after I had a bone marrow biopsy. When he told me, I didn’t hear a word he said after that. I was home alone when he called. I told my husband when he got home.
I did not tell my family through the holidays, it was very hard to keep that secret but I didn’t want to ruin Christmas for my family.
I have had no treatment, I am on a watch & wait situation. I am fatigued all the time, have lost 25… read more

September 18, 2023
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A MyLymphomaTeam Member

I have the same diagnosis 1/2022, via bone marrow biopsy in treatment currently with MD Anderson. I have been on targeted drugs and now on Valcade 4 x a month with infusion 1 x per month. Treatments are not wonderful but thought I would give it a try. What does your doctor mean by “wait and see” what are you test results? Are you not wanting to treat? I’m not as fatigued as I was before treatments . It started as nose bleeds and fatigue for me. I hope you can get it into remission.

September 19, 2023
A MyLymphomaTeam Member

Oops hugs

September 18, 2023

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