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Hi, Is Anyone Here Diagnosed With Classic Hodgkin Lymphoma Suffering Severe Bone Pain?

A MyLymphomaTeam Member asked a question πŸ’­
November 11, 2023
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A MyLymphomaTeam Member

I heard that CLL/SLL can mutate into multiple myloma which is extremely painful in bones. I hope this is not the case for you. I find the oncologists dismisive attitudes to my aches and pains and fears completely inappropriate, I found a Naturopathic oncologist which has been an improvement. She is also an MD and takes medicare!

January 20
A MyLymphomaTeam Member
January 21
A MyLymphomaTeam Member

Yes..feeks like shin splints in my knees to my ankles and toes. Neuropathic pain in toes. Ice them. Then warm them. Try that with some anti inflammation ibuprofen or anelgesuc cream. Prescription Tramadol. It could be fibromyalgia too.
Chemo causes joint pain and inflammation forever. Like arthritis too.

June 15
A MyLymphomaTeam Member

There's articles here that do describe joint and bone pain with lymphoma. My bone marrow aspiration showed lymphoma in my marrow, so stage 4. I have plenty of aching joints, and the long bones of my right leg and sometimes left too. These ache intermittently. Sometimes I stagger as I walk. I should have pressed for answers but my dr was dismissive, Just saying yes you are stage 4. Going back in a month for scans and labs, hope to get some answers on it all. Thank you for sharing.

January 9
A MyLymphomaTeam Member

What are your physician's thoughts on it? Mine believes that lymphoma has not much to do with bone pain.

November 12, 2023

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