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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Would You Change Providers?

A MyLymphomaTeam Member asked a question 💭
Odenton, MD

By providers I mean hospital system, affiliation, and oncologists.

-If during your cancer/chemo journey you were not successful with you results would you change providers if it meant redoing all your labs/tests and diagnosis? V.S. staying with the same provider where all your records are held.

November 29, 2023
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A MyLymphomaTeam Member

I had a oncologist who lied to me twice, he thought he was doing me a favor. This caused me Anxiety. I tried to deal with it because I didn’t want to do anything to change my outcome.
Then there was another situation w his nurse. She refused to respect my wish of not taking my bp on my R side. She said the Dr says this is fine, he makes the big bucks, So you be the Patient and let me be the MA.
(I have had 4 lymph nodes removed in 3 different surgeries. All on the right side. This visit was for a new inflamed lymph node on my neck r mid-clavicle area.)
This irritated me awful, I wanted to leave. When I told the Dr what happened he laughed. His comment was “oh she meant no harm”. I said nothing.
I am a Paramedic RN Firefighter if I treated a patient like this I would be fired.
I spoke to the Director of Patient care. Three times before I decided to switch Dr’s.
Believe me best decision I ever made. My health care is never going to be compromised again.

Not all Dr’s are a good fit for everyone. You must be comfortable. Your mental state is a huge part of your success beating cancer.
We must advocate for ourselves.
I was told recently that my previous Dr is no longer w RMCC, he was walked off.
Im just happy to have a good Dr now. One who is honest compassionate.

If my treatment wasn’t successful I would be searching all options doing whatever it takes. Im not a quitter.

November 29, 2023 (edited)
A MyLymphomaTeam Member

YES I did

November 30, 2023
A MyLymphomaTeam Member

It's tough one. I got diagnosed in North Carolina and doctor and nurse there tried their best to get myself treated there even after I mentioned I don't have any support there and they acted like there is no need for support. Sometime, doctors and nurse might not overall be aligned with your needs. I moved to Houston, as fast as I can, provider here ran all tests again on fast-track and had my first chemo last week. I feel thankful that i made that decision as i am finding support is necessary.

Changing provider during the treatment is something I personally would avoid unless you feel you are not getting right treatment or you can get better treatment somewhere else. Also before switching to new provider, i would check if they are ready to accept me in the middle.

November 29, 2023
A MyLymphomaTeam Member

You go girl! I would have probably cried about it to my husband and expected him to confront the problems. You are an example to us all!

November 29, 2023
A MyLymphomaTeam Member

I was fortunate in so many ways. My cancer was found accidentally after a severe mouth burn, just as it had begun to change into DLBCL. Evidently I had follicular lymphoma for years and didn’t know it. I am a Kaiser Permanente member. The oncologist who was assigned to be my physician is remarkable and I love him. I have received the best care.. and while I am always anxious about a relapse, he is still my doctor, I still see him regularly for followup appointments and I have faith that if I do ever relapse, he will help me achieve complete remission again.

I hope your new doctor is everything you need to reach remission and recovery.

March 3, 2024 (edited)

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