Are thinking about ending your life early?

If you do any research on lymphoma. 5-9 years??? Idk bout stage 4 b cell, so I may be clumping it all together. Mine went into remission and I started at gym and used red light therapy there. That's been two yrs now. My suggestion would be to do something to clean you system out. Suana, sweat, water, red light therapy, walk. All that waste needs to go out of body. I have RA as well, have not done treatment because I do not like flares. Just try to be healthy. I don't know how long I will have to deal with lymphoma but I am believing that God has control of my time & health, so I will be here until he calls me home. It has become such a dark cloud to always have hanging around, that I am refusing to let it hang around anymore. Take care everyone

Larry, thank you for taking the time to explain what you have learned. Some of what you stated is very similar to what I’ve been told about my dad.

It does seem counterintuitive to wait and watch, but I can understand the importance of it. Im thankful you’re able to do so at this point and are healthy.

It depends on the type of Mantle Cell lymphoma. I was diagnosed with Mantle Cell in November 2022 and have been learning as much as I can. There are three general categories. On the least aggressive side of the spectrum is the non-nodal leukemic version. This is in the bone marrow and can result in high lymphocytes and maybe an enlarged spleen. However, people can often go many years without treatment. On the other side of the spectrum is the pleomorphic and blastoid variants. These are much more aggressive and have a poor prognosis without treatment. In between is the classic nodal version. This is what most people have. It can be indolent or more aggressive, or may initially be indolent and then transform to a more aggressive version. This is what I have. I am fortunate that I have a somewhat indolent version and have not started treatment yet. Instead I am being monitored with blood work every 3 months and scans every 6 months. The monitoring shows it is progressing, but slowly. My blood numbers are trending in the wrong direction, my spleen is getting large, and the lumps under my armpits are starting to bother me a little. However, I feel good with only mild symptoms. Therefore, I hope to stay on the Wait and Watch monitoring program for as long as I can. It seems counterintuitive to not treat the cancer, but Mantle Cell is incurable and always comes back. My oncologist wants to hold off on treatment to avoid side effects. I've been assured that, in my case, delaying treatment does not decrease overall survival. In addition to avoiding dangerous side effects from treatment, delaying treatment also delays starting the relapse clock and keeps the treatment options available for when they are absolutely necessary. An important test for Mantle Cell is whether you have the TP53 mutation. If this is present, then chemo may not be effective. I hope your Dad continues to improve with the current treatment plan.