Can Someone Explain The "watch And Wait" Reasoning For Treatment?
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
Waiting every 3 months for my blood levels to get back to normal.
What's The Most Important Thing You Learned About Living With Lymphoma This Past Year?
Enjoy the day and love all!
In What Ways, If Any, Has Your Lymphoma Affected How You Consume Alcohol?
I have reduced substantially my consumption. Now I drink red wine sporadically in social events. Reduced consumption by 90-95%.
Anyone On Here Have Diffuse Large B Cell Lymphoma?
I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.
Your the same story as me I had NHL with Diffuse Large B Cell last year, today I am in remission since Oct 2023
Rituxamab Maintenance Therapy - Do Or Don't???
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
So sorry about your circumstances. Mine are somewhat similar. I got COVID and diagnosed with lymphoma in the same week - Oct. 2021. I kept telling the oncologist I just had COVID but they started me… read more
How Do You Handle Unsolicited Advice Or Comments About Lymphoma?
Well said
What’s The One Thing That's Helped You Most With Fatigue?
Rest a day and listen to my body.
What Advice Do You Have For Others About Managing Fatigue?
What Lessons From Your Lymphoma Experience Are You Applying In 2024?
Yes, traveling is scary especially out of the country with this disease, but I want to be close to my Oncologist i so get that not wanting to travel
Anyone Else Having Family Problems
I’ve got a question, I’ve got cancer, so much has changed with me. There are times I feel like someone else has taken over my body. I guess what I’m trying to say is that it’s hard having cancer and it’s not just me going through this. My whole life has changed, I can’t travel very far, it’s hard on me. It’s hard enough having cancer, I don’t even go outside anymore unless going to appointments, letting the dog out. My daughter keeps pushing me to come there and there is colorado. Lived in… read more
Thank you Lauren, sorry for what you are going through. I’m thinking family is our hardest critics. I just started wearing makeup again since retiring 10 years ago and I’m doing it to feel good about… read more