Yes! I refuse to subordinate myself to a doctor's opinion if I don't feel comfortable. I have just written a book, soon to be published, on the importance of advocacy in healthcare.

To give myself grace to rest when I’m tired or not feeling well! I want to be productive but some days I can’t, and it’s ok! ❤️

I read you guys and I see that more than one of you is still having this exhaustion thing- after treatment. I had last week my last round of Rituximab (750mg every two months, 4 times. Before that once a week four times - PET scheduled for April)) and although I feel stronger is not a permanent strength- some days I feel a lot better, and some days a lot worse. Until now I have been lucky and I haven't caught anything serious, no corona, no urinary tract infections, nothing, just a few stomach issues and sinus infections but nothing ugly. What about you? Infections, body feel after treatment?
I was diagnosed with FL Grade 2 Stage 4 in April last year. What have I learned?... I learned that I live on borrowed time and I have no time for nonsense. I printed out a Memento Mori calendar and I look often, reminding myself that I have no time for people's senselessness and that every minute of my life is a treasure. So, no time for no bull-cheese. ;) It changed the way I face the world.

I agree with the statements above. I wear a mask when I go shopping or attending functions with lots of people around me.

It is not how I planned to start the year for sure. I feel like spending time with my family is important. I don't want to waste time on things that don't seem so important now.