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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Has Anyone Underwent CAR-T Therapy ? What Side-effects One Experiences Following The Therapy And For How Long?

A MyLymphomaTeam Member asked a question 💭
Houston, TX

My R-CHOP chemo regime is partial success and doctors are preparing for CAR-T therapy. So looking forward to what to expect.

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A MyLymphomaTeam Member

Yes, I chose to get in a clinical trial for the bi-specific called Epcoritimab because there is no pretreatment requirement for further chemotherapy. My understanding for CART is (and I hope your… read more

Has Anyone Heard Of Mosunetuzumab (Lunsumioâ„¢) For Never-treated Follicular Lymphoma Patients To Avoid Chemo?

A MyLymphomaTeam Member asked a question 💭
Richmond, VA
A MyLymphomaTeam Member

Google it- it is usually for patients who have not responded to or had recurrence with prior treatment; Me, personally- I wouldn’t try it, but, I am not a doctor…..so, it’s just my personal opinion…

Has Anyone Had Mosunetuzumab Immunotherapy? Also Called Lunsumio. I Have Finished My 6th Treatment And Having A Cat Scan Today.

A MyLymphomaTeam Member asked a question 💭
West Chester, PA

Have 2 more treatments if the scan is good.I've had chemo in the past.

A MyLymphomaTeam Member

I am on a similar drug called brukinsa. I started immediately upon my diagnosis of mantle cell lymphoma and will be for 2 years. I’ve taken it all through my 6 cycles with the hope of avoiding a SCT… read more

I’m On My 3rd Lunsumio Immunotherapy.Has Anyone Experienced Stroke Symptoms, But Went Away After They Stopped The Drug? Was At The Hospital.

A MyLymphomaTeam Member asked a question 💭
West Chester, PA

Relapse B cell. Started with FL, R chop 2014-15, Rituxan 2020, now immunotherapy started 1/3/24

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A MyLymphomaTeam Member

I feel like a kindred spirit.The reoccurrence is inevitable.MCL 2021 original diagnosis,followed by chemo and a stem cell transplant.Ive been on rutuximab bi monthly since.

I Started Lunsumio Immunotherapy On Jan. 3rd. Two Days After Receiving I Had Burning Eyes And Couldn’t See.

A MyLymphomaTeam Member asked a question 💭
West Chester, PA

I have relapsed FL, then B cell. This is my 1st question so please bear what me if I am not doing it properly. Has anyone had reactions from this drug?