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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Mantle Cell Lymphoma, Anyone Here With This Diagnosis?

A MyLymphomaTeam Member asked a question 💭
Portland, OR

I’m on this site because my husband has non Hodgkins follicular lymphoma, but now my mom is going to hematologist tomorrow due to some off labs. The labs indicate the need to further explore the possibility of mantle cell lymphoma. Mom is a few days short of being 90. She’s always been strong and active; my rock. Just wanted to see what experience anyone has had. I am totally in the dark about this type of lymphoma.

January 29, 2024
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A MyLymphomaTeam Member

Thank you for your response Irma, I appreciate you. My mom had her hematology appointment and we are waiting on more test results. What prompted you to get a second opinion? I will also pray for you. Let us know how your appointment on the 8th goes❤️

January 30, 2024
A MyLymphomaTeam Member

I was diagnosed with stage 2 MCL this month. I was going to start treatment but went for a second opinion at UCLA and Dr there recommended wait and watch because my pathology report was missing TP53. Mentioned this to my oncologist and they requested pathology report from the lab to review themselves. I’ll find out on the 8th about updated report and course of treatment. At the time of my diagnosis, I too was active and did not display any obvious symptoms. I will pray for your mom and husband.

January 29, 2024

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