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I Have DLBCL. Just Finished 6 Tx Of RCHOP. My Tumor Is Coming Back. Going To A Lymphoma Specialist. What’s Next After This?
I’m a 64 y/o female who lives in St. Louis with my dog, Hank. I want to get rid of the lymphoma and will do what they recommend, but I’m really afraid of what’s next. Any help is appreciated.
Barb58,
Hi! I'm sorry your tumor is coming back. I hope your next appointment goes well for you. Kelly
Hi, Barb--I have had a few treatments. After RCHOP, I needed to have methotrexate. That didn't work so I had CAR-T. It worked for a couple of months. Now I am on a regimen of rutuximab, brukinsa, and revlimid. I sure hope this works! This is a marathon, not s sprint (unfortunately!). Good luck! Mary
Barb - this is the link & article is under "Resources" on this site....hope it helps provide more information for you & gives you information about which to speak to lymphoma specialist:
https://www.mylymphomateam.com/resources/dlbcl-...
Barb58,
Thank you for adding me to your team. I added you to mine too. I hope you have a peaceful day. Kelly
Oh wow! I’m so sorry to hear that Kurt. I hope the radiation gets rid of the tumor for you. barb
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Any DLBCL Folks On Here?
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