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Has Anyone With DLBCL Have To Have CNS Prophylaxis? If So How Effective Was It And What Were The Side Effects?

A MyLymphomaTeam Member asked a question 💭
Antrim, NH
May 11
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A MyLymphomaTeam Member

You got this! I feel like it’s one more arrow we can use to slay the dragon!!

May 12
A MyLymphomaTeam Member

Thank you so much they said they were going to try it through intravenous drip but might have to be through the lumbar but will definitely ask for a sedative because my back hurts enough already.
Bernadette

May 12
A MyLymphomaTeam Member

Hi Bernadette. I had CNS Prophylaxis treatment during my EPOCH-R protocol. For me, it was a preventative so the cancer wouldn’t spread to the CNS or brain.

Because I was going through treatment at the time and experiencing “normal” chemo side effects, all I can say is I really didn’t experience anything new after it!

One word of advice - ask the Dr. for a mild sedative before the procedure. The mere thought of a lumbar puncture made me nervous!

Also, it actually wasn’t that bad at all!!

May 12
A MyLymphomaTeam Member

I've had 2 occurrences of CNS lymphoma .I've had a total of 13 Methotrexate treatments each time I was in hospital for a week and then I had Stem Cell Transplant that I was in hospital for about a month. My Rituxan and Tebador treatments didn't require any hospital time.

May 23
A MyLymphomaTeam Member

How many treatments did you have and how long were you hospitalized after each treatment

May 23

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