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I Am Newly Diagnosed With Epstein Barr Viral Diffuse Aggressive Large B Cell Non Hodgkin Lymphoma. I Am Not Seeing A Lot Of Info On This.

A MyLymphomaTeam Member asked a question 💭
Webster, NY

I am 58yo and do not have any immunocompromising diagnosis. I am in the process of testing to determine the stage. I am not finding any documentation that represents my situation. I was wondering if there’s anyone else that has this diagnosis and what was your treatment plan. At this point I’m scheduled in the next plus to start R CHOP. But have had some advice to get a second opinion and go where I could be in clinical trials. I’m just very overwhelmed and not sure what to do.

3 days ago
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A MyLymphomaTeam Member

TheresaSchliff,
Hi! I too have/had DLBCL stage IV. I had treatments of RCHOP chemo. I've been in remission for 3 1/2years. I had T cell rich subtype. But as a teenager I had mono really bad and was in the hospital for a week. I believe these could be linked? I know it is overwhelming. I totally understand! However, a diagnosis is your first step to healing. Good luck on your decision. Kelly

3 days ago
A MyLymphomaTeam Member

MarshaWiner,
Oh I'm so sorry you are having to endure this!! How awful. I hope that you feel better soon! You definitely will be in my prayers. Thank you for the update. Sending you a big hug too. Kelly

19 hours ago
A MyLymphomaTeam Member

Hi Kelly,
Had a rough couple of days, Have a skin infection on abdomen which is also swelled. Had an anti- biotic that gave me severe diarrhea. No appetite. night sweats are drenching. I have 2 weeks until next round. Hopefully I will feel better!

24 hours ago
A MyLymphomaTeam Member

It sounds like you're navigating a challenging diagnosis, and it's completely normal to feel overwhelmed. Diffuse large B-cell lymphoma (DLBCL), including Epstein-Barr virus-associated cases, is often treated with R-CHOP, a standard chemoimmunotherapy regimen. R-CHOP has shown success in curing about 60% of DLBCL cases Show Full Answer

It sounds like you're navigating a challenging diagnosis, and it's completely normal to feel overwhelmed. Diffuse large B-cell lymphoma (DLBCL), including Epstein-Barr virus-associated cases, is often treated with R-CHOP, a standard chemoimmunotherapy regimen. R-CHOP has shown success in curing about 60% of DLBCL cases. Seeking a second opinion or exploring clinical trials can be a good idea, especially if you're considering advanced or alternative treatment options.

3 days ago

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