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Hi Any Body With Primary Test Is Dlbcl
I am on r chop cycle 4 now with methotrexate
Any DLBCL Folks On Here?
I’d like any and all advice, information and stories on diffuse large B cell lymphoma!
😇🙌🏻🙏🏻😊
How Long Do I Need To Stay On Methotrexate?. Ive Done 4 Months Of Chemo And Now Am In Remission For Seazory Syndrome.
I was diagnosed with cutaneous T cell lymphoma in Nov.2023 started chemo in Jan 2024 last tx was Romdepsin.
Has Anyone Ever Been Diagnosed With Two Different Types Of Lymphoma?
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Has Anyone With DLBCL Have To Have CNS Prophylaxis? If So How Effective Was It And What Were The Side Effects?
I've had 2 occurrences of CNS lymphoma .I've had a total of 13 Methotrexate treatments each time I was in hospital for a week and then I had Stem Cell Transplant that I was in hospital for about a… read more
Any Success With Proton Radiation For Lymphoma Neck Tumor Any Side Effects Like Tooth Loss. It's Still Untreated
I worry about the side effects so I would not consider Chemo. I have had this neck tumor for almost 2 years and afraid to treat it.
Did you not eat even natural sugars like fruits such as bananas. Etc.
Has Anyone Also Have Lupus In Addition To Lymphoma?
Hi Teri, I don’t have lupus but I do have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Mast Cell Activation Syndrome, Ehlers Danlos Syndrome and Marginal Zone Lymphoma-Stage 4 and chronic pain… read more
Has Anyone Else Had Spinal Infusion Of Methotrexate For Prevention. After Remission ?
I had 4 each were 3/weeks apart , I had Large BCell NHL and aggressive had 5 radiation on 7 c in neck , two bone marrow biopsy’s , and then 6 RCHOP 3 weeks apart hit remission in July2022 . My oncologist at Barrows said where mine was if it came back bones or brain, I appreciated the honesty, 79 now and feeling great . Had ptscan in Dec 2021 still clear
Great news I had 4, 15 mos remission
Has Anyone In The Group Know Or Has Non Hodgkin’s Lymphoma In Their Orbits Eyes? I Do And Just Curious If Someone Else Does!
My non - Hoskings Lymphoma was first discovered in my eye. First treated by methotrexate injections. When found in brain, treated by methotrexate chemo in hospital . Since first chemo with RCHOP… read more
Has Anyone Have Lymphoma In Your Brain
I am one year lymphoma free in June I have been doing great but now I might have it it my brain Tests are coming.
For everyone that made it through to remission from lymphoma in the brain or spinal area I am soooo happy for you! For those who are still struggling be sure that either you or your advocate ask… read more
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