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I have changed treatments and am now doing R-EPOH due to some elevated markers in the detailed pathology. It was done out of an abundance of caution from my Care team and after discussing it with my wife and some consultants, it seemed the right course of action. It requires me to receive this in the hospital for 5 days, every 3 weeks. Not ideal, but we will need to do what we think is best for a cure on our journey. This may be a repeat post, but I am curious if anyone out there is doing/has… read more

See question above. Has anyone discussed with a nutritionist or oncology doctor taking a multiple vitamin, vitamin D2 or K3, or any other supplement either recommended or thought to assist in the recovery or treatment plan. I have done some reading and some supplements act as blood thinners, which certainly wouldn’t help in my case. Looking for some insight from those with experience, any help would be appreciated!

I have been receiving Pola-R Chop chemo for DLBCL since May, and had my last dose in September. Interim PET scans still showed some remaining activity. I was really hopeful that my final PET scan would show complete response, but it seems like there may be evidence of 'disease progression', ie. one remaining area of persistent uptake, where the original large lump was located. It is not in a position where a biopsy can be done, so I have to have another PET scan in a few weeks' time to see if it… read more

I have been diagnosed with Splenic Marginal Zone Lymphoma in March. I’m doing “watch and wait” but I think I might go for the treatment because all I do all night is sweat and I get every virus that comes near me. I want to feel better. Is it work it?

EBCT done 2021 was done at Hospital A and lung portion read normal . 2022 CT where diagnosis was done and all tests until Aug 2024 were done at Hospital B. CT done Aug 2024 was back at Hosp A and it was noted that there was a mass in 2021 that was missed. How much did this delay change my dx? . Sxs at diagnosis were cough, shortness of breath, chest discomfort, and rash.
I have residual brain fog, neuropathy , sleep issues and have not worked since Oct 2022

I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?

Marginal zone lymphoma growing and changing lymph nodes on scans, no other physical symptoms.