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Has Anyone Been Diagnosed With Lymphoma Of The Mesenteric And/or Retroperitoneal Lymph Nodes As Only Location?
Pet scan lit up for two 4cm x 3cm lymph nodes-SUV 14/16 (does that mean anything?) in lumpy lymphs near kidney and right next to outside of colon tissue -oncologist diagnosed lymphoma today but no type yet, biopsy this week if they can reach them. Pet scan says consistent with active lymphoma. Is biopsy the only true lymphoma diagnosis or can the Pet and MRI alone be enough? Conceded to his diagnosis but started questioning without biopsy. Is biopsy in this case for type only?
I understand-they did the same for me to diagnose. The biopsy went great and I’ve been in treatment for four months. I know how hard it is not to worry!
Hi All! I Am Scheduled To Have A Bone Marrow Biopsy In 2 Weeks. I Am Scared!!! I Have Heard That It Was Very Painful.
Diagnosis is Marginal Zone Lymphoma
Been through fine needle biopsy, excisional biopsy, CT scans, and PET scan.
What are some things I can say or do to get help from doctor as far as anxiety.
Hi Hope
I have had 2 bone marrow biopsies and was also very anxious. It really sounds worse than it is. They gave me very light sedative which worked fine for me. Everyone involved is very caring… read more
Follicular Lymphoma
Follicular lymphoma is a rare, slow-growing type of non-Hodgkin lymphoma that affects B cells, a type of white blood cell in the immune system. It is often diagnosed in older adults and can be managed… read more
Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?
I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more
Sorry to hear what you’re going through. My suggestion is that you goo to a hospital that specializes in cancer like the one I’m going to, Sloan Kettering, they will give you much better service. You… read more
My Lymph Nodes Are Swollen Under My Right Arm I Haven’t Been Diagnosed Formally Yet, But They Want Me To Get An Ultrasound On The Lymph Node
There’s two of them in the back of my left arm that are swollen and have been for a month now not the other I’m just one arm. Just wondering if that sounds consistent lymphoma? And what should I do moving forward to be sure it isn’t cancer?
Get an ultra sound .If they are not sebaceous cyst or lipoma , then biopsy .Cat scan is more specific
Best
Frank
How Do You Handle Loosing Faith In Your Treating Oncologist/assistant?
My check up yesterday, I knew would be with assistant, I met 1 time prior and tried not to make judgment. Yesterday I asked pointed questions! I couldn't get an answer!!!! Agh! I asked "what is the name of my leukemia?" She's scanning my chart online... ummm I don't know, it doesn't say. Wow I say. The initial blood work said CD5 small B cell leukemia. She then says "yeah, yeah it says that". Then I asked "Is that the name then?" She said "Um I don't know" I said OK then what's the name of… read more
I cannot stress enough the importance of 1) getting a second opinion and 2) finding an oncologist who only does your cancer. I had a second opinion and went to a non-profit cancer center to be with a… read more
Should I Get My Covid Booster I’m Scared I Think The Vaccine Gave Me Lymphoma
Hi Wanda2 - Could be - I agree - All the best to you 🫠❤️ The Palliative Care Team associated with your treatment facilty is another support resource for sorting things out and referrals if needed ❤️… read more
Looking For Others With Hodgkin Lymphoma - Subtype Nodular Lymphocyte Predominant HL And Treatment Received & Time Frame If Relapsed.
He was 4B on diagnosis & had 6 x R-CHOP which put him into complete remission.
How Does One Deal With The "wait And Watch" Senario, And How Often Do You Get Scans?
I was diagnosed with stage 3 Follicular lymphoma in Oct 2020. Waited 3 months until Feb 2021 for another scan. Again told to wait and see. Not much growth in nodes. I also have an enlarged lingual tonsil that does seem to concern anyone.
I feel the same way.
Hello Are There Members Here Diagnosed With Follicular Lymphoma?
We found my husband incidentally as well. He did 12 rounds of radiation and has been in remission since August. He will have scan again next month. We are so thankful. I hope you have good results as… read more
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