Connect with others who understand.

Sign up Log in
Resources
About MyLymphomaTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyLymphomaTeam Member 26 answers
View Answers

Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

By A MyLymphomaTeam Member 48 answers
View Answers

What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 39 answers
View Answers

How Do Beverages With Caffeine Affect Your Lymphoma?

By A MyLymphomaTeam Member 68 answers
View Answers
2170 questions

Wait And Watch? Or Bendamustine And Rixutan 6 Cycles.

A MyLymphomaTeam Member asked a question 💭
Brick, NJ

I was diagnosed with indolent Mantle Cell Lymphoma. No symptoms, almost nothing to detect in blood test and some very small lymph notes seen on PET scan. Biopsy and testing pointed to very slow indolent process. Had 4 months first follow up scan and blood test. Very little changes in scan and blood test. I have urticaria for 2.5 years which was not attributed to any lymphoma at that time. But now it may have been a symptom of it. Doctor offered now those 2 choices. She says that this treatment… read more

A MyLymphomaTeam Member

Bendamustine and Rituximab have severe side effects for some of us.. lookin resources for this info or any reputable website..

May 8, 2024

I Have Daytime Sweats That Get My Hair Wet My Face My Upper Torso When I Do The Lightest Activity And It Stops You In Your Tracks

A MyLymphomaTeam Member asked a question 💭
Ocala, FL

My oncologist never asked what symptoms I am having his visits are 15 min ! And I try to ask question as I have RUNX1 familial rare platelet disorder related to multiple malignancies and have yet to be tested or treated and already having pulmonary embolism you would think ? The lab test and tx is under Pubmed ! It is discouraging and I am not going to be told to go to Mayo, Moffitts, UFShands the worse specialist that assume a patient is alcoholic rather than read the medical notes it is NAFLD… read more

A MyLymphomaTeam Member

Hi Cathy - I highly recommend your making an appointment with a different oncology group. No need to share your experience you've had with the group with which you are currently a patient. Have access… read more

May 6, 2024

The Protocol For DLBCL Is 6 Rounds Of RCHOP, However He’s Gone Into Total Remission After 3 Cycles.

A MyLymphomaTeam Member asked a question 💭
Miami Beach, FL

He was diagnosed as stage 3 but is in complete remission after half the chemo, is there any reason he would do more than 4 cycles? It seems crazy that he would pump those chemicals into his body when there’s no sign of disease just because it’s protocol. I can’t find any research regarding this.

A MyLymphomaTeam Member

I had my treatment’s reduced in strength when severe reaction occurred…negotiate a plan with oncologist

May 9, 2024

Hi Everyone. I Have Just Completed Treatment For DLBCL NH Lymphoma. I Love Wine And I’m Wondering If Anyone Out There Continues To Drink It

A MyLymphomaTeam Member asked a question 💭
Feilding New zealand
A MyLymphomaTeam Member

Give it time I love bourbon but had to give it up through treatment. As I recovered I was able to enjoy it again.

May 7, 2024

How Long Does The Tiredness Last After Completing The Six Cycles Of Bendamustine And Rituxan.

A MyLymphomaTeam Member asked a question 💭
Hanford, CA

I get my 4th cycle next week and I'm wondering how long I can expect to feel tired after this treatment is done.

A MyLymphomaTeam Member

you could use some natural supplements from NCHC, they prescriptions are extremely effective , i am certain it will really help

May 6, 2024

Has Anyone Been Diagnosed With "Triple Hit" DLBCL? It's Rare And Conventional Therapy Hasnt Respond To It? Looking For Alternative Therapy

A MyLymphomaTeam Member asked a question 💭
Austin, Texas, TX
A MyLymphomaTeam Member

CindyBlow,
I hope you find a treatment that helps you. I hope you have a peaceful day. Kelly

April 30, 2024

Just Wondering If There Is Anyone Else In This Group Who Has Primary Cutaneous Bcell Lymphoma ? I Know We A Very Rare Bunch ☺️

A MyLymphomaTeam Member asked a question 💭
Enniskillen, UK

Has Anyone Received The Immunotherapy Mosunetuzumap? It Is Only Available In The Large City Hospitals. I Finished My 8th Cycle-have 4 More

A MyLymphomaTeam Member asked a question 💭
West Chester, PA
A MyLymphomaTeam Member

Good Luck and God Bless

April 28, 2024

What Is Second Line Therapy For Marginal Cell Lymphoma. ( This Is After A Successful Course Of Rituxan.

A MyLymphomaTeam Member asked a question 💭
Germantown Hills, tn
A MyLymphomaTeam Member

I don't know. Right now we are just being followed and Joan is somewhat apathetic which frightens me. I laugh which is a way of coping with terror. I would like to know what the future steps are… read more

May 12, 2024

For The Survivors Of Breast Cancer, Did It Hurt When You Squeeze Them, One Of Mine Is Painful When I Pinch Just A Little??

A MyLymphomaTeam Member asked a question 💭
54601 lacrosse Wisconsin
A MyLymphomaTeam Member

Yes it does hurt when you squeeze them. Best not do it.

April 30, 2024
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in