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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

I Suspect The Cov'd Vaccine Triggered Lymphoma

By A MyLymphomaTeam Member 26 answers
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Which Lymphoma Symptom Surprised You The Most?

By A MyLymphomaTeam Member 84 answers
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What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyLymphomaTeam Member 26 answers
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Do You Have A Hobby To Help Take Your Mind Off The Cancer?

By A MyLymphomaTeam Member 26 answers
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2177 questions

Adcetris

A MyLymphomaTeam Member asked a question 💭
Indian, AK

My 21 yo daughter was diagnosed with cHL stage 3/4 in Oct 23. She was prescribed 6 cycles ( day 1 - 50 mg and day 15- 100 mg) of A- AVD protocol. After cycle 2, her PET CT scan showed No evidence of disease
Due to side effects Brentuximab was paused in cycle 4..It has been resumed in cycle 5&6 with a reduced dosage (50 ml each on day 1& day 15). Her chemo sessions were supposed to end on May 10 but the oncologist says that the 2 doses she missed in cycle 4 needs to be given as maintenance… read more

A MyLymphomaTeam Member

JoytNair
Hi! I have/had DLBCL and had treatments of RCHOP chemo. I didn't have to have maintenance however, I too was tired and didn't want the last two treatments out of a 6 cycle treatment plan.… read more

April 2, 2024

I Have Not Yet Started Chemo But I Have Had Alot Of Pain In My Legs They Feel Weighed Down.....is This Normal? Is There Anything I Can Do?

A MyLymphomaTeam Member asked a question 💭
P.e.I canada

Is Anyone Bothered By Incessant Itching?

A MyLymphomaTeam Member asked a question 💭
Miramar, FL

Follicular Lymphoma

A MyLymphomaTeam Member

Get many of the same things… pops up out of nowhere and then in a day it’s gone !

May 7, 2024

Any Success With Proton Radiation For Lymphoma Neck Tumor Any Side Effects Like Tooth Loss. It's Still Untreated

A MyLymphomaTeam Member asked a question 💭
Cape Coral, FL

I worry about the side effects so I would not consider Chemo. I have had this neck tumor for almost 2 years and afraid to treat it.

A MyLymphomaTeam Member

Did you not eat even natural sugars like fruits such as bananas. Etc.

April 17, 2024

Does Anyone Bruise Taking Zanabrutinub

A MyLymphomaTeam Member asked a question 💭
Boston, MA
A MyLymphomaTeam Member

no bruising but I started Jan 25th terrible migraine and headache for first week took Imitrex and extra strength Tylenol no problems since best of luck

March 30, 2024

Couples: In Which Ways Has Your Partner’s Diagnosis And/or Journey Affected Your Relationship?

A MyLymphomaTeam Member asked a question 💭
Ontario, CA

When illness was a hypothetical — a promise in a vow, or a far-away romanticism found in the mildness of “growing old together” in uncomplicated ways — I assumed that illness would cause the rest of the world to disappear. I assumed we would suddenly feel closer, more intimately connected, and that our troubles and everyday frustrations would melt away into the background of the burning dilemma we face together… of the thought of one of us being unwell, or the fear of loss.

But that’s not true… read more

A MyLymphomaTeam Member

It hard. Im not as strong as him I fell apart .I rely on him, he's my everything we don't have children and have a very small family. I cry a lot. I find my self some time fighting with him and he… read more

March 27, 2024

Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

A MyLymphomaTeam Member asked a question 💭
San Francisco, CA
A MyLymphomaTeam Member

Hi Dianne5
If you take Clariton 2days prior and 2 days after it will fight the bone pain also short walks to get the blood flowing helps.

May 29, 2024

Hi I Have Started To Have Hot Flushes After Chemo For Hodgkins Lymphoma. I Have Never Had Them Before Not Even During Menopause.

A MyLymphomaTeam Member asked a question 💭
Auckland, NZ

The flushes started about 8 weeks after chemo and radiation. I had a clear scan after 4 cycles of ABVD chemo and 15 doses of radiation.
Thank you for any help with this.

Has Anyone Had Car-T Twice?

A MyLymphomaTeam Member asked a question 💭
Oshkosh, WI

Has Anyone Tried Any CBD Products For Pain? Do They Work?

A MyLymphomaTeam Member asked a question 💭
Kingsport, TN
A MyLymphomaTeam Member

I tried it. Sadly it didn't work for me.

March 25, 2024
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