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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 45 answers
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Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

By A MyLymphomaTeam Member 48 answers
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Are You Frustrated With Finding Effective Treatments For Lymphoma?

By A MyLymphomaTeam Member 44 answers
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Which Lymphoma Symptom Surprised You The Most?

By A MyLymphomaTeam Member 84 answers
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2188 questions

Side Effects Of Rituxan

A MyLymphomaTeam Member asked a question 💭
Roanoke, VA

I finished my first series of infusions of Rituxan two weeks ago and scheduled for another Cat scan 12/8. Wondering if any of you dear people could tell me what side effects you endured during several series of the same. Just diagnosed so forgive me if I don’t use the proper medical terms or ask stupid questions.(-:)

A MyLymphomaTeam Member

Retuxin and bundemustine was my chemo cocktail…made me very tired and that could be the benedryl they gave me…..didn’t lose all my hair! Thinned out a little, lost my eyebrows ( they still aren’t… read more

November 30, 2023

Nutrition Advice?

A MyLymphomaTeam Member asked a question 💭
Mamaroneck, NY

Since completing CAR-t-Cell therapy, I have been experienced stomach problems (i.e. diarrhea) Does anyone have advice on what fruits, vegetables, or other foods you can tolerate?

A MyLymphomaTeam Member

Thanks, John! Macaroni & cheese agrees with me. Good luck in your next treatment...

November 30, 2023

How Was Your Journey Of Diagnosis ? Once You Got To Know About Cancer, What Were Your Feelings ?

A MyLymphomaTeam Member asked a question 💭
Houston, TX

For me it took 5 months to diagnose. What started as simple coughing in May month took shape of DLBCL in October. I went from Primary care physician to Gastro to Oncologist, each making me do blood work almost every other week (more than combined tests i might have undergone in my life so far) plus other tests which i can't even remember now.

I was in denial for initial 2-3 days but letting my family and friends know helped me get out of denial, and start working on my treatment. Shifted from… read more

A MyLymphomaTeam Member

Thank you so much for your reply. What you said makes perfect sense. I will pass this along to my BIL.

December 4, 2023

Has Anyone Undergone Chemo And Or Radiology For More Than A Year Before Hitting Remission?

A MyLymphomaTeam Member asked a question 💭
Odenton, MD

Does Stem Cell Transplanted Eliminate The Virus That Caused Adult T Cell Leukemia/lymphoma?

A MyLymphomaTeam Member asked a question 💭
Canberra, AU
A MyLymphomaTeam Member

Hi, so glad you are well! How was yours diagnosed? What were your EBV numbers? I wasn't even aware I had EBV, I had antigens, old infection but numbers greater than 600. Lots of infections, swollen… read more

April 10, 2024

Which Option Is Better For Relapsed Mantle Cell Lymphoma As A Third Treatment Line: Pirtobrutinib Or An Academic CAR T-cell?

A MyLymphomaTeam Member asked a question 💭
Barcelona, Spain

Great Talk From An Expert On MCL

A MyLymphomaTeam Member asked a question 💭
New Jersey, NJ

https://player.vimeo.com/video/881221727

A MyLymphomaTeam Member

Thank you Roger. Very informative and helpful!

November 27, 2023

Is It Necessary To Do PET-CT Every Year Post Treatment? Please Share Your Experience.

A MyLymphomaTeam Member asked a question 💭
Indian, AK

My husband was diagnosed with DLBCL, Stage 1 E, in June 2020. He had done his last PET-CT in June 2021. We are regularly doing LDH test, Recent blood test shows LDH is elevated (374). Currently, there are no symptoms...Is there any need to do PET-CT?

A MyLymphomaTeam Member

Thanks KellyS and MaryRandall your prompt response.

November 26, 2023

I’m In My Eighty’s, Have Indolent MCL, And Have Been On Watch And Wait For 4 Years Without Any Treatment Or Medical Intervention.

A MyLymphomaTeam Member asked a question 💭
Colorado Springs, CO

Lately the beast has shown signs of awakening and my oncologist is thinking about skipping the chemo treatment and going directly to treating the disease with a BTK inhibitor, hopefully, a second or third generation version. Anyone have a similar experience?

Is There Anything I Can Take For The Terrible Muscle Pain From Acalabrutinib

A MyLymphomaTeam Member asked a question 💭
Pearl River, NY
A MyLymphomaTeam Member

Thank you!

November 27, 2023
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