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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Brukinsa" in Q&A. To see all results and access other features, sign up for free.

Is Anyone Taking Brukinsa For Their Non Hodgkins Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Summerfield, NC
A MyLymphomaTeam Member

Hope all continues to look good on your blood tests!

Since The Weather Has Changed And It Is Much Cooler, I Have Been Feeling 90% Better. Is This Somewhat Normal..??

A MyLymphomaTeam Member asked a question 💭
Atlanta, GA

Ready to start Brukinsa, and now I am second guessing the decision. When I went to my on a month ago, I was feeling really bad, and he said it was time to start based on how I felt. Part of me says don’t do it, but part of me thinks my body may handle it better if I am feeling a little better, versus feeling really bad, as I was all summer! Thoughts??

A MyLymphomaTeam Member

Kathy I have been on Brukinsa since January PT scan every few months no problems other than fatigue

What Is Newest Re Treatment For Waldenstroms

A MyLymphomaTeam Member asked a question 💭
Buffalo Grove, IL
A MyLymphomaTeam Member

Cute 😊

I'm About To Start Brukinsa For Waldenstoms. Had It Since 2006. IgM At Only 975. Any Si Effects? Im Already Fatigued With Bad Fibromyalgia.

A MyLymphomaTeam Member asked a question 💭
Crapville, TX
A MyLymphomaTeam Member

Been on Brukinsa since January no side effects like James mentioned for me thankfully I just have my normal fatigue

I’ve Been Diagnosed With CLL And On The Wait/see Program. Generally, How Long Is It Until The Disease Takes Off!

A MyLymphomaTeam Member asked a question 💭
Sierra Vista, AZ
A MyLymphomaTeam Member

It took me a couple of years before I needed to be treated. So far good results. White blood cell down and no side affect. I’m taking Brukinsa

I Am Having A Medicine Called Brukinsa Delivered To Me. Is That The Norm To Have Medication Mailed To You.

A MyLymphomaTeam Member asked a question 💭
Bc

brukinsa is new for me. and I am anxious to try it out. but more than willing to try it out.

A MyLymphomaTeam Member

It is. I’ve been on it for almost 8 months for CLL and my insurance company has always sent it to me next day air. It concerned me at first because a 30 day supply is almost 14k. For me, I only… read more

IM On Brukinsa After 4 Years On Remission...so Far Doing Well Does Anyone Out There Using Brukinsa And If So For How Long And Is It Working

A MyLymphomaTeam Member asked a question 💭
Orlando, FL
A MyLymphomaTeam Member

I have been on Brukinsa since Jan. along with my B&R cycles. March scan showed good improvement on the MCL, I have another scan July 15th and Rituxian maintenance on July 18th other than fatigue I am… read more

Do You Stay On Brukinsa Forever? How Does It Work?

A MyLymphomaTeam Member asked a question 💭
Spokane, WA
A MyLymphomaTeam Member

I was told by my onc that it is not a given that I will be on it for life. I do know it can be used as a “maintenance” drug after you get into remission.

Has Anyone Had Experience With Brukinsa For MCL?

A MyLymphomaTeam Member asked a question 💭
Jacksoonville fl

Getting Covid While Remission.

A MyLymphomaTeam Member asked a question 💭
Clermont, FL

What treatment did you take? Are we supposed to contact his PC or his Oncologist?

A MyLymphomaTeam Member